The Smile of Sebastien
Organized by: Chef Jean Christophe Setin
Our son Sebastien was diagnosed at 4 years old with MELAS. It is a progressive Mitochondrial disease. He is now 14 and is extremely delayed and is losing his ability to walk. We hope to raise money to take care of a few bills and donate the rest to the Foundation for Mitochondrial Diseases lead by Dr. John Shoffner.