What IS a Spinning Noodle?
The spinning noodle is I, Shakira. I was dubbed that name when my little brother gave me the "crazy" gesture, and I interpreted it as a spinning noodle.
Diagnosed two years ago at 14 years old:
- I lost my "friends", whom were "just joking!" as they mocked the way I "acted like" my hands hurt.
- I lost my hobbies, such as dancing, basketball, and JROTC because I was no longer physically able to participate.
- I lost my love, the sun, as I can't leave the house without sunblock on, even on rainy, WA days. When I'm out, I have to stay in the shade and wear a hat as well.
- I lost my beloved hair after a couple sessions of chemotherapy, later to be discontinued. With my hair left my confidence and pride. I wore a wig to school every day for one semester, until I realized that the whole "beauty is from within" thing wasn't just something nice to say.
- I've had to chug no less than 8 pills a day (now) and up to 14 pills a day!!
- I lost my fear of needles and doctors in general, as I've been lucky to have a good doctor.
- I lost my low self-esteem and thoughts that short hair was a masculine thing.
- I lost my dependence on the Army in my life as a military brat, for I can not join. In a way, I'm blessed to have the opportunity to pursue my passion and venture into a different path from my family.
- I've found hope, respect, and love in religion and have brought my family closer to me and to each other.
Thanks to lupus, I have picked up swimming as a new favorite sport of mine.
Thanks to lupus, the sun won't give me extra wrinkles. :)
Thanks to lupus, I have a stronger sense of empathy and am therefore a very active volunteer to the local food bank, a tutoring program at a church, and to SOUL's (Surrounded by Others, United by Lupus) walks and fundraisers.
Thanks to lupus, I can fundraise for people with fatal symptoms of lupus, who need help, but can't garner as much support.
Thanks to everyone and anyone who can donate one dollar to better the odds that the family I may have in ten years will be happy and safe from this fatal, chronic disease.
You're saving lives, present and future. I couldn't thank you enough for the support.
All proceeds are going to the University of Washington (Seattle's) Medical Research Facility to help cure lupus.
The Spinning Noodle.