Timothy S. Pressey Memorial Fund
Organized by: Lisa Bengivenga Pressey
July 24, 2016
Timothy S. Pressey had a life changing experience on January 28, 2013. He had a tumor rupture in his head and was diagnosed with grade 4 brain cancer. He went back to work for 2 1/2 years. July of 2015 it started to come back. We had to wait for a tumor to grow in order to receive radiation. The doctor never told us there was a 5mm tumor in January of 2016.He said everything looks good there is no change. I asked for Genomic testing to be done and no one let us know the results. Instead they put him on Avastin which seem to make him much worse. He lost all control of the left side of his body. In March I took him to the ER and was told he had a tumor. He received radiation in April. I received notes in the mail telling me there was 2 tumors, but luckily they were both radiated. On May 8th (Mother's Day) I had to take him back to the ER as he could not move the left side at all. I had just gotten home from visiting my dad in the hospital. My husband was in the hospital for 12 days and had PT, and OT. He came home in a wheelchair. We were able to do transfers to and from the bed for 2 weeks and then he got so weak we couldn't even do that. Now he is in bed all the time and he is on medication to keep him comfortable. At least he is in his own home. Just to give you a little back round on Tim, he served his country in the Army for 16 years as a master gunner. The veterans administration isn't going to give much back to him. Me and my children are not entitled to anything. He also worked for Norfolk Southern RR for 11 years. He was a very hard worker as he worked 7 days a week. He is 51 years old and we have two children. One is 23 and the other is 9 years old. Right now he is in hospice care at home. We are going to lose our health insurance after April of next year unless he passes we will probably lose it sooner. We have piles of medical bills coming in for thousands of dollars owed. He also does not have any life insurance. When we applied the first time we found out he was diabetic and had to wait another year before applying again. Before that year was up he was diagnosed with a grade 4 brain tumor. Our house was flooded in 2014 and I was working on getting t a loan from the bank, but had to put it on hold. Now with only receiving his disability it will be a problem. I am a stay at home mom and I home school my 9 year old. It works out well as I can have Tim home and care for him. Nurses come in everyday for an hour and I have to do the rest. At least he will not have to die in a facility. He just keeps asking me how did I go from working 7 days a week to being so sick. He was always one to help someone in need. He gave his family everything. It is very hard to watch such a strong man waste away in front of our eyes and not be able to do anything to help him. It leaves you feeling helpless. Not knowing what else to do for memorial services and medical bills, etc. I am asking for help. I am taking the time to thank in advance anyone who donates to his fund.