BENEFITING: The Sudden Arrhythmia Death Syndromes Foundation
Timothy Syndromes Alliance
The mission of Timothy Syndromes Alliance (TSA) is to raise physician and public awareness and to improve the health and well-being of those affected by Timothy Syndrome\Long QT8, through education, research and family support. The Alliance was formed by two concerned mothers and Katherine Timothy, for whom the syndrome is named, in association with the SADS Foundation. In 2016 TSA held its first ever family support gathering and a one day conference as part of the SADS International Conference, held in San Diego, California. It was a rare opportunity for patients and families to meet in person and attend a syndrome specific roundtable discussion with Katherine Timothy. Patients traveled from all over the United States, and were represented world-wide, as far away as Hong Kong. In 2016, being fiscally conservative with contributed funds, Timothy Syndromes Alliance was able to provide travel scholarships to families as needed. Your generous gift will enable TSA to once again assist in travel and accommodation scholarships for families all over the world. The 2017 International SADS Conference will be held in Toronto, Canada, and will once again host a break out session for Timothy Syndrome/Long QT8 families. Patients and families will once again be able to meet together, and will also be able to hear from experts, and additionally have the opportunity to ask questions regarding some of the greatest medical concerns that affect Timothy Syndrome/Long QT 8 patients. Thank you for your support!