March 21, 2017
Thank you everyone who has donated to my page. I know how much my father cared about his friends and family and you are part of the reason that See more
Almost a year ago today, my father passed away in his sleep after a long battle with a disease known as MSA (Multiple System Atrophy). My father worked a lot to provide for our family, but that meant our time together was limited and MSA did not make that any easier. Several years back my father moved to Florida at the advice from a doctor that a full time pool would help his degenerating body through water therapy. When first diagnosed, my father was hopeful, by the time he arrived in Florida, he was worried. There were good days and bad days, and then they started to all blend together. Taking away his ability to walk was the hardest. My father had always been a very active person and encouraged my brother and I to do the same. He loved to travel, he loved to play a game of basketball and go to the gym. The walker took away those experiences. But MSA did not feel like that was enough, and then took away his ability to speak and when he did speak he had no filter. This scared people and placed a sense of guilt that no one should have to feel. He was angry and upset with no way to express himself. I remember one time I went to visit him and my stepmother in Florida and he wanted to take me to the beach (he know how much I loved the beach as we use to spend a week there most summers) and when we got there he had to stay on the sidewalk while I walked down to the water with my stepmother. That was the moment I realized how different and struggling his life really was, he couldn't even enjoy a simple thing such as enjoying a day at the beach. This disease took our father before we even really started our lives. My father will never meet my children, he will never see my brother or I get married, he will not watch me graduate college. No one can prepare you for how difficult it is to lose a parent and we shouldn't have to force children to become adults before their time. Please, if you have any money to donate, even if it's just a $1, donate. In one of my last emails with my father, he told me how proud he was of me and how intelligent I had come to be. My previous email had been about a treatment I learned about in class I thought may help. There's no world where someone deserves to fall to this disease, and it is time that we find a cure. Please help us get to that point.