Tom's Trip to Russia To End CIDP

Organized by: Mary Sedita

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Mary's Photo
 

owner profile image Mary Sedita via Crowdrise
March 01, 2015

Here is the link for Tom's Crowdrise Account. Thanks A Million for helping change Tom's life. This will happen, of that I am sure. HUGS!! See More

THE STORY:

Whoo hoo, we are in!! I cannot even begin to describe the joyous feelings we experienced when we read the email from Dr Fedorenko that Tom had been accepted to into Russia for Hematopoietic Stem Cell Transplant.
Tom was diagnosed in 2010 with a little known autoimmune disease called CIDP or Chronic Inflammatory Demyelinating Polyneuropathy. In a nutshell his body's immune system has started to attack the myelin sheathing or the covering of his nerves and is destroying it, leaving the nerves exposed. This in and of itself is very painful. Along with this symptom people with CIDP also suffer from a host of other ailments. Examples would be tingling, numbness, loss of deep tendon reflexes, fatigue and abnormal sensations.
Everyday life expectations become an issue as they are affected by the progression of the CIDP, I.e., grasp.... buttons on shirts, tying shoelaces, steering wheel for driving, screw drivers and other tools that require clasping and turning and changing a diaper...
Tom has not given up!! Through research and communicating we found out about HSCT and the clinical trials in Chicaco. Great place by the way with even greater people! Unfortunately he did not quite fit the criteria, we tried twice. I cannot even begin to tell you how disappointing that was. Anyhow, through the magic of social media we found Russia. We sent in paperwork and the hardworking Dr Fedorenko has agreed to see Tom.
It will be a 6 week journey that I will be joining him on. They did say in sickness and in health...

$1,511

 

3% Raised of$50,000 Goal

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  • Dan Makar

    $42

  • Smarty Pants

    $97

  • Laurie Nowland

    $100

  • Jill Kasselman

     

  • Jennifer Reich Bullitt

    $100

  • Cathryn And Herb Smith

    $100

  • Y. Montes

    $25

  • C. Smith

    $40

  • M. Peralto

    $25

  • M. Bejaran

    $40

  • Carol Cayard

    $100

  • Lisa Peddy

    $100

  • Clay, Deana and Liv

     

  • Magee Gang

    $125

  • Cathryn S

    $20

  • Dee

    $26

  • Kim W

    $100

  • Jill K

    $30

  • Someone who's already done hsct!

    $250

  • Kerri Byrne

    $100

  • Mcknight

    $30

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Organized by

Mary Sedita

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The Team: $1,511 TOTAL RAISED SO FAR

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Donor Comments

Mcknight

Mcknight

DONATION: $30

4 years ago

Kerri Byrne

Kerri Byrne

DONATION: $100

4 years ago

Someone who's already done hsct!

Someone who's already done hsct!

DONATION: $250

4 years ago

Kim W

Kim W

DONATION: $100

4 years ago

Dee

Dee

DONATION: $26

4 years ago

Cathryn S

Cathryn S

DONATION: $20

4 years ago

Jill K

Jill K

DONATION: $30

4 years ago

Magee Gang

Magee Gang

DONATION: $125

4 years ago

Clay, Deana and Liv

Clay, Deana and Liv

4 years ago

Lisa Peddy

Lisa Peddy

DONATION: $100

4 years ago

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