matthew schwartz via Crowdrise
September 13, 2010
BENEFITING: Dysautonomia Foundation, Inc.
The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Foundation, please go to http://www.familialdysautonomia.org.
Because FD is so rare, funding for research primarily comes from reaching out to family and friends of those afflicted with the disease. To that end, I am asking you to consider any level of support for my efforts to help raise money for FD research. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request. To support my ride, please go to: www.fdcycletour.org, click on “Sponsor a Rider” and look for my name.