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Brian McIntyre's Fundraiser:

Team JGSF Twilight Zone Tower of Terror 10-Miler Weekend

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2014

Brian McIntyre

THE STORY:

Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing skin to shear off your body. This is what life is like for children with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. It is the worst disease you've probably never heard of. Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Children with EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of their shortened life. 

A nephew of some close friends of mine named John Hudson Dilgen suffers from EB. John is a great, strong and brave kid who fights this disease every day. Please watch this short video about John Hudson and what he faces on a daily basis:

https://www.youtube.com/watch?v=oM5Am04eIIE  

On October 4, I will be running the 2014 The Twilight Zone Tower of Terror™ 5K in John Hudson's name to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that funds scientific research with the goal of treating and curing EB. 

Please consider making a donation to help me reach my fundraising goal of $1,000.  Every dollar brings us a step closer to finding a cure for this horrible disease.  You can help support kids like John Hudson and Team JGSF by going to http://www.crowdrise.com/fundraiser/edit/towerofterror10miler/brianmcintyre

Thank you so much for supporting John Hudson Dilgen and the work that the JGSF is doing to find a cure for EB.

Brian McIntyre

DONATE

To This Fundraiser

$1,000

MONEY RAISED
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  • Erik Johnson

    $20

  • Joy

    $50

  • Kate Britton

    $50

  • Maureen Sheridan

    $50

  • Gin McErlane

    $25

  • Tara Murphy

    $25

  • The Alexander Family

    $50

  • Caroline & Andy Reichert

    $75

  • SCOOBY AND CAITLIN

    $50

  • The Rellas

     

  • Mark & JoAnn O'Callaghan

    $50

  • Vincent McIntyre

    $50

  • Diane Lee

    $50

  • Joann McIntyre

    $50

  • Jamie & Jeff Keim

    $100

  • Brian and Deirdre McIntyre

    $265

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100% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $20,521 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Liz Morano

Amount Raised

$8,055

 

269% Raised of $3,000 Goal

Fundraiser Title

Faye Dilgen

Amount Raised

$2,050

Fundraiser Title

Nick, Alex and Claudia Morano

Amount Raised

$2,018

 

101% Raised of $2,000 Goal

Fundraiser Title

TracyAnne Morelli

Amount Raised

$1,575

 

315% Raised of $500 Goal

Fundraiser Title

Erik Johnson

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

John Purpura

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

Brian McIntyre

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

Theresa Johnson

Amount Raised

$893

 

179% Raised of $500 Goal

Donor Comments

Brian and Deirdre McIntyre

Brian and Deirdre McIntyre

DONATION: $265

John Hudson Dilgen 4 years ago

Jamie & Jeff Keim

Jamie & Jeff Keim

DONATION: $100

4 years ago

Joann McIntyre

Joann McIntyre

DONATION: $50

4 years ago

Diane Lee

Diane Lee

DONATION: $50

4 years ago

Vincent McIntyre

Vincent McIntyre

DONATION: $50

4 years ago

Mark & JoAnn O'Callaghan

Mark & JoAnn O'Callaghan

DONATION: $50

Have a great time for a great cause! JH is one of the bravest and strongest people I have ever met. 4 years ago

The Rellas

The Rellas

4 years ago

SCOOBY AND CAITLIN

SCOOBY AND CAITLIN

DONATION: $50

WAY TO GO BRIAN! 4 years ago

Caroline & Andy Reichert

Caroline & Andy Reichert

DONATION: $75

Good luck Brian. 4 years ago

The Alexander Family

The Alexander Family

DONATION: $50

4 years ago