I'm no marathon runner,or short distance runner,or any form of runner... but I decided to participate in my first 5K this October. If I'm not a runner why am I running?
I am running for all who suffer from Epidermolysis Bullosa ("EB"). Most of all I am running for someone who is very important to me,my nephew John Hudson Dilgen. John has an infectious smile and manages to always stay upbeat no matter what life throws at him. He is a rockstar and my hero. Please donate and help me reach my goal.
The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB"). EB is a devastating and life-threatening skin condition that affects children from birth. Individuals with EB lack a critical protein that binds the layers of skin together. Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.
The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota. In three short years, JGSF has raised over $1 million and has made a significant difference in the field of EB research and the pursuit of a cure.
Thank you all for your support in continuing our mission!