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Erik Johnson's Fundraiser:

Team JGSF Twilight Zone Tower of Terror 10-Miler Weekend

Erik's Photo
Erik's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2014

Erik Johnson

THE STORY:

I'm no  marathon runner,or short distance runner,or any form of runner... but I decided to  participate  in my first 5K this October. If I'm not a runner why am I running?

 I am running for all who  suffer from Epidermolysis Bullosa ("EB"). Most of all I am running for someone  who is  very important to me,my nephew John Hudson Dilgen. John has an infectious smile and manages to always stay upbeat no matter what life throws at him. He is a rockstar and my hero. Please donate and help me reach my goal.

About JGSF:

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1 million and has made a significant difference in the field of EB research and the pursuit of a cure.  

Thank you all for your support in continuing our mission!

 

 

DONATE

To This Fundraiser

$1,055

MONEY RAISED
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  • Kathy Willis

    $20

  • Crissy Harvey

    $20

  • The Errico Family

    $25

  • Katie Scotko

    $40

  • Fr. Michael L. Gelfant

    $100

  • The Vernon Family

    $50

  • Chris & Jenn Knott

    $25

  • Artie and Pat Lighthall

    $50

  • Katie & Tommy Smith

    $30

  • Kevin Harvey

    $40

  • Hartman Family

    $25

  • Matty O'Connell

    $25

  • Agnes ganci

    $25

  • Pop Pop & Mom Mom Purpura

    $100

  • Anonymous

    $10

  • Theresa & Fish

    $50

  • Mom and Dad

    $75

  • The Rellas

    $50

  • Vincelli Family

    $25

  • The Schlageters

    $50

  • Siobhan Wheeler

    $20

  • Barbara Poggioli-Esposito

    $50

  • The Crowley Family

    $25

  • Jenn Donnelly

    $50

  • The McIntyre Family

    $25

  • Aaron Rodgers

    $50

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106% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $20,521 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Liz Morano

Amount Raised

$8,055

 

269% Raised of $3,000 Goal

Fundraiser Title

Faye Dilgen

Amount Raised

$2,050

Fundraiser Title

Nick, Alex and Claudia Morano

Amount Raised

$2,018

 

101% Raised of $2,000 Goal

Fundraiser Title

TracyAnne Morelli

Amount Raised

$1,575

 

315% Raised of $500 Goal

Fundraiser Title

Erik Johnson

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

John Purpura

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

Brian McIntyre

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

Theresa Johnson

Amount Raised

$893

 

179% Raised of $500 Goal

Donor Comments

Aaron Rodgers

Aaron Rodgers

DONATION: $50

4 years ago

The McIntyre Family

The McIntyre Family

DONATION: $25

Had to get you to the goal 4 years ago

Jenn Donnelly

Jenn Donnelly

DONATION: $50

4 years ago

The Crowley Family

The Crowley Family

DONATION: $25

4 years ago

Barbara Poggioli-Esposito

Barbara Poggioli-Esposito

DONATION: $50

Every step is one step closer to a cure. Way to go Erik! 4 years ago

Siobhan Wheeler

Siobhan Wheeler

DONATION: $20

4 years ago

The Schlageters

The Schlageters

DONATION: $50

4 years ago

Vincelli Family

Vincelli Family

DONATION: $25

4 years ago

The Rellas

The Rellas

DONATION: $50

4 years ago

Mom and Dad

Mom and Dad

DONATION: $75

4 years ago