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John Purpura's Fundraiser:

Team JGSF Twilight Zone Tower of Terror 10-Miler Weekend

John's Photo
John's Photo
John's Photo
John's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2014

John Purpura

THE STORY:

Epidermolysis Bullosa is an extremely rare genetic skin disease which my nephew, John Hudson suffers from. On a daily basis John Hudson experiences severe blisters and wounds equivalent to 2nd and 3rd degree burns throughout his body, as well as numerous other complications. It is often John Hudson who teaches and inspires us; therefore I am happy to struggle to run, because he struggles to walk.

Although those who suffer from Epidermolysis Bullosa may be few, the pain goes far beyond the skin to effect and pierce the hearts of the entire "EB world." The Jackson Gabriel Silver Foundation and our team are racing to find a cure and are determined to do so through your efforts.

Your love and support are sincerely appreciated!

"F" EB

DONATE

To This Fundraiser

$1,055

MONEY RAISED
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  • Betsy Hendry

    $50

  • Fr. Michael L. Gelfant

    $100

  • Joey Muffin Shannon and Meaghan

    $100

  • Davis Family

    $100

  • Anonymous

    $25

  • Katie & Tommy Smith

    $30

  • Jean and Donald Johnson

    $25

  • The Hanley's

    $100

  • Anonymous

    $150

  • Jeff V - Squad 2

    $50

  • Mike and Christina Forlenza

    $25

  • Sean O'Sullivan

    $50

  • Michael and Marianna

    $100

  • Hickey family

    $50

  • Sandra Kaplan

    $50

  • Aunt Pattipoo

    $50

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106% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $20,521 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Liz Morano

Amount Raised

$8,055

 

269% Raised of $3,000 Goal

Fundraiser Title

Faye Dilgen

Amount Raised

$2,050

Fundraiser Title

Nick, Alex and Claudia Morano

Amount Raised

$2,018

 

101% Raised of $2,000 Goal

Fundraiser Title

TracyAnne Morelli

Amount Raised

$1,575

 

315% Raised of $500 Goal

Fundraiser Title

Erik Johnson

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

John Purpura

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

Brian McIntyre

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

Theresa Johnson

Amount Raised

$893

 

179% Raised of $500 Goal

Donor Comments

Aunt Pattipoo

Aunt Pattipoo

DONATION: $50

Good luck John! 4 years ago

Sandra Kaplan

Sandra Kaplan

DONATION: $50

JH, for all you do for others, you are a constant inspiration. 4 years ago

Hickey family

Hickey family

DONATION: $50

God Bless John Hudson 4 years ago

Michael and Marianna

Michael and Marianna

DONATION: $100

4 years ago

Sean O'Sullivan

Sean O'Sullivan

DONATION: $50

4 years ago

Mike and Christina Forlenza

Mike and Christina Forlenza

DONATION: $25

4 years ago

Jeff V - Squad 2

Jeff V - Squad 2

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $150

Kick Ass! 4 years ago

The Hanley's

The Hanley's

DONATION: $100

Good luck Uncle John!!! 4 years ago

Jean and Donald Johnson

Jean and Donald Johnson

DONATION: $25

4 years ago