Epidermolysis Bullosa is an extremely rare genetic skin disease which my nephew, John Hudson suffers from. On a daily basis John Hudson experiences severe blisters and wounds equivalent to 2nd and 3rd degree burns throughout his body, as well as numerous other complications. It is often John Hudson who teaches and inspires us; therefore I am happy to struggle to run, because he struggles to walk.
Although those who suffer from Epidermolysis Bullosa may be few, the pain goes far beyond the skin to effect and pierce the hearts of the entire "EB world." The Jackson Gabriel Silver Foundation and our team are racing to find a cure and are determined to do so through your efforts.
Your love and support are sincerely appreciated!