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TracyAnne Morelli's Fundraiser:

Team JGSF Twilight Zone Tower of Terror 10-Miler Weekend

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2014

TracyAnne Morelli

THE STORY:

I am doing another 5K to help raise money to  find a cure for a disease you have probably never heard of, Epidermoylosis Bullosa, EB. It is a life threatening genetic skin disorder that affects children from birth.  Their skin is a fragile as a buttery's wings.  The slightest touch can cause it to blister and shear off.   

This is my very dear friend John Hudson.  Some of you may know him or have seen him on the TV show the Doctors.  He suffers from this rare disease and I was blessed to have been one of his nurses while I lived in NY.

He is the strongest child I have ever met.  He and other children like him must endure bandage changes that take hours to complete.  These dressing changes require the child to be heavily medicated on strong pain meds so that they may endure a bath usually with vinegar or bleach, removal of their old bandages, popping of their new blisters and the application of new bandages.  Unfortunately this disease is not limited to the outside of their body it can also affect the inside, their mouths, eyes, esophagus, genitals.  A child with the severe form of EB has a greater chance of dying before adulthood.

I am asking you, actually begging you, to please help me to help them by donating to this cause.  Every little bit helps.

Thank you for your support.

 

DONATE

To This Fundraiser

$1,575

MONEY RAISED
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  • Tony and Jacq

    $30

  • Tim

    $50

  • Stacey Krebushevski

    $20

  • Remax Realty Center International

    $200

  • Ibram & Maryann

    $20

  • Laura Felmore

    $25

  • Donna Ralko

    $50

  • The Eberle Family

    $25

  • Giana

    $55

  • MauraJean Spatola

    $50

  • Diane Gustafson

    $25

  • Veronica Larney

    $20

  • Mary and Joseph Sturges

    $50

  • Suzanne Ruryk

    $50

  • Mr. and Mrs. Russell Hope

    $100

  • Drew Bergeron, Cavell Chong and Catherine Meginley

    $25

  • Mike and Pat Meeker

    $25

  • thirty dollars

    $30

  • Anonymous

    $100

  • The Casaburi Family

    $100

  • Sean, loriann and addison

    $50

  • The Soyer Family

    $25

  • Michael Ryan

    $100

  • Andrea Greenwalt

    $100

  • Dolores, Mattea, Angelica & Peter Cogliano

    $150

  • Buckley Family

    $50

  • Carol Nembrotti

    $25

  • The Cohen Family

    $25

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315% Raised of $500 Goal

Fundraise for this Campaign

The Team: $20,521 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Liz Morano

Amount Raised

$8,055

 

269% Raised of $3,000 Goal

Fundraiser Title

Faye Dilgen

Amount Raised

$2,050

Fundraiser Title

Nick, Alex and Claudia Morano

Amount Raised

$2,018

 

101% Raised of $2,000 Goal

Fundraiser Title

TracyAnne Morelli

Amount Raised

$1,575

 

315% Raised of $500 Goal

Fundraiser Title

Erik Johnson

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

John Purpura

Amount Raised

$1,055

 

106% Raised of $1,000 Goal

Fundraiser Title

Brian McIntyre

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

Theresa Johnson

Amount Raised

$893

 

179% Raised of $500 Goal

Donor Comments

The Cohen Family

The Cohen Family

DONATION: $25

4 years ago

Carol Nembrotti

Carol Nembrotti

DONATION: $25

4 years ago

Buckley Family

Buckley Family

DONATION: $50

4 years ago

Dolores, Mattea, Angelica & Peter Cogliano

Dolores, Mattea, Angelica & Peter Cogliano

DONATION: $150

Amazing...All of you! 4 years ago

Andrea Greenwalt

Andrea Greenwalt

DONATION: $100

4 years ago

Michael Ryan

Michael Ryan

DONATION: $100

4 years ago

The Soyer Family

The Soyer Family

DONATION: $25

4 years ago

Sean, loriann and addison

Sean, loriann and addison

DONATION: $50

Good luck! 4 years ago

The Casaburi Family

The Casaburi Family

DONATION: $100

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

4 years ago