BENEFITING: TRISOMY 18 SUPPORT INC
EVENT DATE: May 03, 2015
I will be running the Pittsburgh Half-Marathon on May 3, 2015 to raise money for the Trisomy 18 Foundation. I have created this Fundraising page in honor of my angel baby Maliha Sonni who was born into heaven on February 8, 2008 and all the other babies’ diagnosed with Trisomy 18. Thank you all for your support!
"Every child's life, no matter how fragile their life, or brief their days, forever changes the world" - Victoria Miller, Trisomy 18 Foundation Founder
"Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a error in cell division, known as meiotic disjunction. Trisomy 18 occurs in about 1 out of every 2500 pregnancies in the United States, about 1 in 6000 live births. The numbers of total births increase significantly when stillbirths are factored in that occur in the 2nd and 3rd trimesters of pregnancy.
Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life.
Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independently without assisted caregiving." -Trisomy 18 Foundation
- Please visit the Trisomy 18 Foundation website for more information.