trying to go to the mayo clinic for a rare kidney disease
Organized by: Cecilia Ziemer
I was diagnosed with a rare kidney disease calledmedullary sponge kidney. I am living in unimaginable pain every day along with passing kidney stones and cysts in my kidneys causing life long infections and ending in kidney failure at witch point I will have to have a kidney transplant... I am trying to get to the mayo clinic in the USA to see a specialist about what I can do to help my kidneys from getting worse or even just to slow this painful disease. I have 2 children and would have to bring them with me as they are to young to stay home while I am gone. Anything will help.