TUBIE SUPPLIES TO KEEP GAVIN ALIVE! HELP ME KEEP MY PROMISE!
Organized by: Viki Short
The sweet boy in the picture is my youngest grandson, Gavin. He is four years old and weighs only 19 pounds. That's not a typo. Gavin was a preemie born too soon and too small. The doctors told us to prepare ourselves for the worst. His chance of survival was slim at best. That was 4 years ago and our Ironman (he loves Robert Downey, Jr. in that red suit!) has survived but has not thrived. Gavin has already had four surgeries in his young life. The last one was to insert a feeding tube to reverse the weight loss and keep him alive. He's also had two heart surgeries with more to come and emergency bowel surgery in the middle of the night. The surgeon told his parents that, had they waited, he would not have made it to morning. Scary stuff, eh? Now, down to business. Gavins feeding tube was ineffective in helping him gain weight because the medical grade puree system he desperately needed was hella expensive and the insurance company, despite the doctors prescription, said NO! Why? Because they can. So I began a local fundraiser (Gavin lives in California) to buy the puree system and some of the attachment/extras needed to make the tubie food the right consistency. The puree has to remain in his system long enough for Gavin to absorb the vitamins and nutrients that Gavin needs to live. Success! Grandmom is now known as Ironmema. So, what the hell am I doing launching another fundraiser? I'm glad you asked! The ingredients Gavin needs and the other supplies required for each tube feeding total $270 a week. Just for Gavin. My son, his dad, works 7 days a week and sleeps in his car at work to save gas money. To, hopefully, save his sons life. Gavins mom has to bare the burden of caring for Gavin alone. I'm too far away for now but Papa and I are working on that situation. Until then we use the cyber world to keep in touch, plot and plan and generally support each other in our common goal. What Gavin needs now is basically grocery money. Organic, no gmo, unusual, hard to find natural food stores kind of groceries. Many of the ingredients have to be purchased online. Thank God for Amazon Prime. A great source we go to every week. But now, their funds are dwindling. We have been sharing the financial burden that is crushing them. I'm selling my antiques and collectibles on ebay to pitch in what I can. We.also pay for other non-food items. And now you know why I am here hat in hand. Do you have a picture of Alexander Hamilton or some other founding fathers that you can donate? Sharing our story would be a wonderful gesture as well. I have promised Gavins big brother, and my first born grandson Logan, that I will not let his little brother die. Any help keeping that promise would be appreciated beyond words! Thank you for letting me babble on.