BENEFITING: Turner Syndrome Society of the United States
The TSSUS has re-committed our professional advisory board and now we have 18 TS specialists that have committed to creating health care policy standards. This means we are coordinating scientists, clinicians and patient advocates to create a Turner Resource Network (TRN) that will connect health care resources so that women and girls can access regional health care based on facts/research and theirphysicians can easily access TS specialists, studies and up to date health guidelines. It has taken much effort to make phase one of bringing all stakeholders together at the professional symposium, planned for July 13-14, 2014. The budget for the symposium is $60,000 and we have projected funds still needed of $34,000.