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Deborah Rios' Fundraiser:

The Turner Syndrome Society of the U.S. needs your support to help to fund research

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Deborah Rios

THE STORY:

The TSSUS has re-committed our professional advisory board and now we have 18 TS specialists that have committed to creating health care policy standards. This means we are coordinating scientists, clinicians and patient advocates to create a Turner Resource Network (TRN) that will connect health care resources so that women and girls can access regional health care based on facts/research and theirphysicians can easily access TS specialists, studies and up to date health guidelines. It has taken much effort to make phase one of bringing all stakeholders together at the professional symposium, planned for July 13-14, 2014. The budget for the symposium is $60,000 and we have projected funds still needed of $34,000.

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$11

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  • Butterfly Mom AC

    $11

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0% Raised of $34,000 Goal

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The Team: $11 TOTAL RAISED SO FAR

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Donor Comments

Butterfly Mom AC

Butterfly Mom AC

DONATION: $11

We don't have much, but I believe that everyone can give a little. I challenge all to give a little, because a little goes a long way. Together we can bring awareness and help to all. Today I want to remember all those who are diagnosed later in life. I know this research project will move us forward to better understandings. 4 years ago