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Tyler's Kidney Doctor Fund

Organized by: Lisa Nelson-Mason

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THE STORY:

Hello everyone my name is Lisa Mason. On September 15,2009 I gave birth to a little boy that I name Tyler Lee'Nelson Mason. Coming into the world we knew that his heart was going to be beating faster than normal but I could never image what was yet to come. Within the hour they took my son from me and sent him to another hospital because of his heart beating so fast. Basically after many test my newborn son was diagnosed with a Congenital Heart Disease which consists of a Hypoplastic Right Ventricle & Pulmonary Valve Artresia meaning my baby has half a heart. So within 5 days of being born he had to have heart surgery. My son underwent placement of a modified Blalock-Taussig shunt in the neonatal period. On April 29,2010 he subsequently underwent a bilateral bidirectional Glenn operation. I really thought nothing else could or would go wrong. One morning we wake up and Tyler face and body was swollen we rushed him to the hospital & they ran test. Well the test came back that now Tyler has Nephrotic Syndrome. This means that his body isn't holding protein and Tyler is using the bathroom more often. After all this Tyler 3rd surgery that is called a Fontan Operation on his heart is postponed until we get this Nephrotic Syndrome under control. I'm coming on here asking for funds because this syndrome has attacked my son kidneys which he is at 35% now. I have asked the doctor in Dallas can he get put on a donors list for his kidneys but they are saying he has to be at 20% before that can happen. Well Tyler is 7 now and can barely walk down stairs without saying mommy I'm tired and it's because he is pass due on his heart surgery because the kidney doctor won't do anything about his kidneys. So I have to watch my son swell up every time he close his little eyes to go to sleep. This hurts my soul so bad because Tyler don't understand what's going on. Just recently I rushed him to the hospital because he wake up and he couldn't open his right eye. The kidney doctor told me it's nothing that can be done because if they do his heart surgery 1st he will die on the table and if they do his kidneys 1st his heart wouldn't take the surgery well. So this doctor looked me in my eyes and said I know this is going to sound bad but someone has to die for my baby boy to live meaning they want to do his kidney and heart surgery the same time. We have find a good kidney doctor but he doesnt take Medicaid and I dont have private insurance so we have to pay out of pocket. The visits are $356 a month and right now I have 3 other kids at home which make Tyler number 4 so I know I cant afford his appointments. The only reason we are sticking with this kidney doctor is because he was the only doctor that diagnosed him when no other doctor knew what was going on. Also you can send donations to 9539 Wickersham Rd Apt 2071 Dallas, Tx 75238 if you can't donate online

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Lisa Nelson-Mason

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