A note from Hailey -
My goal is to walk or run 19 laps for PCDH19. Please help contribute to raising money to help my cousin Violet be cured.
Julie Walters wrote -
Laps for Ladybugs is a family friendly walk talking place in multiple cities throughout the world to raise funds to support the PCDH19 Alliance and the world-class research we fund. We are relentlessly and urgently working toward a treatment for this devistating and deadly disease that starts shortly after birth and causes clusters of life threatening seizures and also leads to cognitive impairment and other devistating symptoms. We are parents, grandparents, family, friends, physicians, researchers, and medical professionals coming to together to stop this disease from taking our children and this is your chance to join our our work and be a part of changing lives!