I am planning on fundraising for Global Genes to promote awareness and education of rare forms of illness. Did you know? 1 in 10 people have a rare illness? Staggering!
I was shocked to learn of my own "rarity". Polycythemia Vera Rubra, a myeloproliferative neoplasm. Fancy words for, defunct bone marrow, or bone cancer. It is a progressive disease with no cure, YET!
That's where you and I come in! How did the "pink" get started? People just like you and me with a condition, an illness that targets to kill. So, let's get our denim on, and join me, in spirit or person, VIRTUALLY, in March!
LET'S RAISE THAT MONEY!! CHANGE OUR PROGNOSIS!!!