Amanda Vonder Schmalz via Crowdrise
November 06, 2011
BENEFITING: Vasculitis Foundation
EVENT DATE: Nov 06, 2011
Amanda's Vasculitis Fundraiser
After months of training and completing the New York City Half Marathon my father decided to run the New York Marathon in 2007. It was always on his Bucket List. During the marathon an Abdominal Aortic Aneurysm (AAA) burst around the 15 mile mark. He was not able to continue and eventually was flown by Medivac Helicopter to the Hospital of the University of Pennsylvannia. He survived the 7 hour life saving surgery. After being in the best shape of his life, the day before, he awoke in the ICU with a breathing tube in his throat and hooked to all kinds or monitors. The vast majority of people who experience a AAA do not survive. He is extreemely fortunate.
After extensive testing he was diagnosed with an extreemely rare disease called PolyArtiritis Nodoasa or PAN. PolyArteritis Nodosa is a form of vasculitis and is a disease of unknown cause that affects arteries ,the blood vessels that carry blood from the heart to organs and tissues. Six months of Chemo Therapy was necessary to bring the PAN under control.
At that point more surgery was needed to remove a portion of my fathers colon. The artery that burst fed his colon and the lack of blood flow did severe damage. There were complications with the colon re-section and my father could not eat any solid or liquid food for 5 months.
My father was out of work for about a year and thanks to the Doctors and Nurses at The Hospital of the University of Pennsylvannia he is back to living a normal life. He will always have PAN and will have to go for routine check-ups for the rest of his life.
I will be holding my official Vaculitis Fundraiser on October 23, 2011 at the 263 MarketPlace in Warminster off of York Road. There will be raffle baskets as well as entertainment by the Absolute Music School . All donations will be added to this web page total. My father is also running the New York City Marathon on November 6 to raise additional donations for this fundraiser.Donations for running the marathon can be made at any time on this web page through November 6.
Please come out and support our cause! Every little bit really does count.
Amanda Vonder Schmalz
I am extreemely proud of Amanda for organizing this fund raiser . As part of her fund raiser I am going to run the 2011 New York City Marathon to raise additional donations.
Also , I'm eternally grateful to all the Doctors and Nurses at Doylestown Hospital and The Hospital of the Univerity of Pennsylvannia. I feel extreemely fortunate and blessed to be able to be with my family. Since my illness I have seen both my oldest daughter and son graduate grade school and both turn 16. I was able to see my youngest daughter graduate kindergarten and attend her first day of first grade. My oldest daughter passed her drivers license test and turned 18 and my son received the Basketball MVP awards for both LaSalle and CB South. I was also able to see my oldest daughter play the lead role in Annie for her eight grade play. Without the "ROCK STAR" doctors and nurses at HUP I would have missed out on those memerable experiences.
Thanks to all the Nurses and Doctors involved in my recovery especially Dr Birnbaum , Dr Blum , Dr Carpenter and Dr Morris. Hopefully I will be able to experience all the good things to come in the future like college graduations, weddings , birthdays, holidays and all the unexpected pleasures of life.
I also want to thank my family and freinds for all their support during my illness especially my parents, wife and children. You were my inspiration!
Raising money for the Vasculitis Foundation is my way of giving back by bringing awareness to PAN and to provide funds for research that may prevent, treat and cure PAN in the near future.
Thanks for your Support,
Karl Vonder Schmalz
NEVER GIVE UP !!
Join the Team -
You can join our team and have a web page that honors a loved one affected by Vasculitis.You will be able to tell their story and raise donations in their name that contributes to the team total. If you join , I will wear a picture of your loved one on my shirt during the marathon and run in honor of them. By joining together we can raise an unlimited amount of money for the Vaculitis Foundation. I can raise a limited amount of donations on my own, but together the sky is the limit.
Its very easy to join our team and start your own web page through Crowdrise. Its also free. I can help you through the process . Go to www.crowdrise.com/nyc and veiw the video on the bottom left of the page which will explain the Crowdrise concept and answer many questions. All donations go directly to the Vasculitis Foundation.
If you do not choose to start a web page ,in a loved ones honor, I will still wear their picture if you make a donation to this web page.
Contact me for details at firstname.lastname@example.org .
I'm In , Are You In?