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Amanda Ballesteros' Fundraiser:

TEAM CONNER

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LETS HONOR CONNERS WISHES!
August 16, 2016

Lets honor Conners wishes and help children who are battling with a chronic illness. After Conner passed away we found a letter addressed to  See more
Amanda Ballesteros

THE STORY:

I would like to share with others the story of my Angel, Conner Ryan Lloyd, in the hope of helping others struggling with Evans Syndrome and other chronic illness, and to let them know they are not alone. My son was born a healthy 8-pounds 9-ounces on September 12, 1999. He was a perfect baby and always happy. In 2004, our lives changed forever. Conner started to develop bruises almost overnight. Some thought this was a case of abuse, and an investigation was opened. We ended up at Primary Children's Hospital in our hometown of Salt Lake City, Utah. After undergoing blood tests, we discovered Conner had ITP. He was given an infusion of IVIg, and I thought everything was going to be OK. A few months went by. Conner developed a cough. I took him for a check up, and they found his hemoglobin (red blood) was low. We went straight to the hospital for additional testing. After the bone marrow biopsy came back negative for cancer, we were able to sigh relief. The blood test came back Coombs positive, and the disease rare: Evans Syndrome. Conner was in and out of the hospital every couple of months for mostly minor low blood counts, and he always responded quickly with a treatment and prednisone. It was difficult for our family to adjust to hospital stays and treatments, but after a while we adjusted to the situation knowing it would be a chronic illness. Eventually we decided to give rituximab a try. Conner went into remission for 8-9 months at a time! My son was actually able to live a normal, healthy boy's life. In May 2012, Conner wasn't feeling well. Stomach pains, anemia, and fatigue. We were admitted into the hospital. After 11 blood transfusions, IVIG, 500 mg prednisone, Cellcept, rituximab, and a splenectomy, Conner lost his battle with Evans Syndrome. It was June 8th, 2012. His kidneys were very stressed and not able to release all the toxins from treatments, and his potassium count rose to a level that stopped his heart. A parent never prepares themselves enough to lose a child. I honestly did not think Conner would have passed from this disease and its complications of treatment. I don't know if there was another underlying disease that he may have had, but the pain that Conner suffered is now over. May he rest in paradise. Conner wanted to be a doctor so he could help other kids going through a chronic illness. I believe sharing his story is a way of helping him achieve this goal. He is an amazing, brave, and dearly missed little boy. As part of the Evans Syndrome Community Network, I have met some wonderful families in support of raising awareness and promoting research on autoimmune blood diseases including Evans Syndrome. I want to be a part of the support that families and individuals need when suffering from chronic illness. I want my son's name to always be remembered. Hopefully his story helps another. Amanda Ballesteros Mother of Conner Lloyd 09/12/1999-06/08/2012

$520

MONEY RAISED
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  • Amanda Ballesteros

    $35

  • Kathy Cooper

     

  • Jimmy Ballesteros

     

  • Renae and Terry Forsyth

    $50

  • Kevin Baronowsky

    $250

  • Michelle

    $100

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35% Raised of $1,500 Goal

The Team: $520 TOTAL RAISED SO FAR

Fundraiser Title

Amanda Ballesteros

Amount Raised

$520

 

35% Raised of $1,500 Goal

Fundraiser Title

Mary Johnson

Amount Raised

$0

Donor Comments

Michelle

Michelle

DONATION: $100

Go team Conner!! 1 year ago

Kevin Baronowsky

Kevin Baronowsky

DONATION: $250

1 year ago

Renae and Terry Forsyth

Renae and Terry Forsyth

DONATION: $50

For Little Miss Hannah Foundation & for my little Conner ~ Love you all! 1 year ago

Jimmy Ballesteros

Jimmy Ballesteros

1 year ago

Kathy Cooper

Kathy Cooper

I smile whenever I think of you, Connor!! Only the best of memories!! 1 year ago

Amanda Ballesteros

Amanda Ballesteros

DONATION: $35

2 years ago