Venetia Needs a Kidney
Organized by: Venetia Sjogren
Over the years, I have had to make a clear delineation between the family you are born into and the actual family members who really regard you as "family". My "family" circle is quite small. I have thought this as I laid dying in ICU from sepsis, multiple hospital stays because of my multiple sclerosis, hospital stays due acute kidney failure, and a few hospital stays because of strokes. The reality is that my friends have been my family, over the years.
Some of it is my fault, I was very busy being too sick, to call write, or whatever. Some family members I have never met and have no interest in meeting me.
In any case, I have been suffering from Stage Four Kidney Failure. I need a new kidney. My daughters have offered their kidneys. I love you Shai and Rissa. My sister, Kristin, has also generously offered to get tested and if she is compatible, wants to donate her kidney. I love you sis and have not told you this, enough times the years.
I am already over-whelmed with medical bills from treating my multiple sclerosis, prior hospital stays and surgeries. Thus am setting up this page to help with present and future medical costs, as my insurance only pays 80 percent of approved charges, after deductibles. Thankfully, they pay 100 percent of the donor's costs.
I will be added to the National Transplant List once my kidney functions are at 10% . In November 2013, my functions were at 19%. In January 2014, my kidney functions were 15%. Current lab results, show them to be at 13%. My kidney doctor is readying me emotionally for dialysis, in the event, neither my sister or my daughter test as compatible donors. Then the search for a kidney donor nationally, AND the wait, will commence. I will keep the page updated as the situation unfolds.
When my kidney function is at 10%, I will require additional medications to prepare my body for a transplant and/or dialysis. (Sometimes, a person has to undergo both procedures). This will be in addition to the medications I already have to consume to manage my MS, anemia, vitamin deficiencies and fibromyalagia. And I still have been unable to pay for three medications I require to manage those illnesses.
Donations will be used for the following:
2. doctors bills
4. laboratory fees
5. in home nursing care
6. medical supplies ie bandagers, normal saline, syringes etc
Guys, I am a published poet and over the years, have made gallows-humor jokes about poets only becoming famous, after they have died. I would REALLY prefer to become famous now instead of later. LOL. My books on Amazon:
Being ill has severely affected my writing and my ability to work. Hell, it affects every iota of my life, from my ability to walk to my ability to THINK. To say that illness is intrusive grossly minimizes what I can articute adequately. Sickness has taken my joy. I was working on several short stories as well as a short story with my friend, Vicky Gallardo, when my kidney functions plummented. I had also completed a rough outline and a preface for a science fiction book, and additionally, had started working with four friends on a new poetry book. The mental fog, fatigue, eating problems, muscle spasms and pain I was experiencing affected the whole writing process. So I laid in bed and fell into a depression. I didn't have enough money to pay my medical bills and I couldn't work. I had decided that I would not neither go on dialysis or get a kidney transplant. BUT THEN MY FRIEND DELORES STEPPED IN. I had been friends with Dee since High School. We lost track of each other shortly before my divorce from my first husband but fortuitously, she found me on Facebook. Goddess, I love the internet! She convinced me to live when I was prepared to die.
Guys, I require assistance with my costs.Hence I am reaching out to friends and strangers. It's embarrassing to ask since I have always been a keep a stiff-upper-lip type of gal. So if you can, give a dollar, five, twenty, or whatever you like and if you would be so kind, pass this website on. Thank you. Namaste.