In May of 2011 I had what I thought was a flu bug. Over the next few weeks, my body began to exhibit some very strange and difficult symptoms. Extreme fatigue, heaviness in my arms and legs and eventually numbness and internal tremors progressed daily. This was a very crazy time going through tests, bloodwork, more tests and no diagnosis. Having no definate answers to what was happening to my body was so hard on me and my family and friends.
On July 25, 2011 I was diagnosed at the University of Michigan with Transverse Myelitis, a rare neurological auto immune disease. TM affects 3 to 8 people in a million. There are no definate answers why, but my immune system got confused and caused inflamation that attacked and damaged the meylinin sheath that protects the nerves in the cervical area of my spine. This has caused many residual symptoms that continue to affect me on a daily basis.
I've had to make a lot of adjustments over the past two years. Many changes have been difficult and life changing. I've walked through times of fear, depression, and have wondered "why".
I have been loved and cared for so well by my family, friends, church and co-workers. I thank God for all the amazing support I've received!
I'm continuing to learn to listen to my body, and respond to what it needs each day. My heart breaks for friends who struggle so much more than I do. It's heart breaking to see the precious little children who suffer with TM.
As aI walk this journey I continue to know that God is faithful. I remain HOPE FILLED as I pray for healing, restoration and a cure for all of us!
On October 5 we will gather with our families and friends to Walk/Run/Roll and to educate and raise awareness for TM in our state. Funds are needed for research. I hope you can join us!
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