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Victoria Ganzi's Fundraiser:

Victoria Ganzi - NFE | 2016 TCS NYC Marathon

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BENEFITING: Children's Tumor Foundation

EVENT: NFE | 2016 TCS NYC Marathon

EVENT DATE: Nov 06, 2016

Victoria Ganzi

THE STORY:

The Children's Tumor Foundation's NF Endurance Team is running the 2016 TCS New York City Marathon to end NF through research. 

 

Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.

 

NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution. 

 

The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.

 

Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.

 

There is currently no effective treatments nor a cure, but you can help!  Support our team today!

 

1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.

 

2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.

 

3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.

 

Please email us at nfendurance@ctf.org with any questions!

 

Thank you!

DONATE

To This Fundraiser

$7,375

MONEY RAISED
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  • Anonymous

    $50

  • Ganzi Family Foundation

    $2,500

  • Rupi Arora

    $100

  • David E. McNamara, MD

    $100

  • Scott and Demaree Cooney

    $50

  • paul butler

    $25

  • Ross and Janet

    $75

  • Sully

    $1,000

  • Nate, Mary, and Ilsa

    $500

  • Gloria and Joe

    $250

  • Bonnabeau family

    $250

  • Maryann & Rajat

    $100

  • Matt & Ric

    $200

  • Ted & Diana Candella

    $300

  • Keller Family

    $50

  • Paul & Lauren Randall

    $100

  • Rosemary Harris

    $100

  • andrea and marty kind

    $50

  • Jeanne Colin Bartkus

    $25

  • Kelly, Jimmy, Sean and Lizzie

    $50

  • charlene sepulveda

    $25

  • Love the Alzapiedi Family

    $100

  • Anonymous

     

  • Merge n Red

    $50

  • Charles & Barbara Randall

    $50

  • Barbara and Pete Smith

    $100

  • Anonymous

    $100

  • Zink family

    $500

  • Anonymous

    $25

  • John T. Lutz

    $500

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Donor Comments

John T. Lutz

John T. Lutz

DONATION: $500

1 year ago

Anonymous

ANONYMOUS

DONATION: $25

1 year ago

Zink family

Zink family

DONATION: $500

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Barbara and Pete Smith

Barbara and Pete Smith

DONATION: $100

2 years ago

Charles & Barbara Randall

Charles & Barbara Randall

DONATION: $50

2 years ago

Merge n Red

Merge n Red

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

2 years ago

Love the Alzapiedi Family

Love the Alzapiedi Family

DONATION: $100

We love you Victoria !! 2 years ago

charlene sepulveda

charlene sepulveda

DONATION: $25

2 years ago