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Nick Starr's Fundraiser:

Wake Up Narcolepsy Boston 2016

BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: 2016 Boston Marathon

EVENT DATE: Apr 18, 2016

Nick Starr

THE STORY:

Imagine sitting in a job interview. It's your dream job. You've prepped for it every day for two weeks. You feel passionate about their mission, you love your potential coworkers. You know you're the best candidate. But halfway through the interview with the CEO, you fall asleep. Out cold. 

 

Many of you might laugh at the visual of someone falling asleep at a job interview, or maybe you shuddered with empathy. But this is reality for my sister. Diagnosed with narcolepsy in 2005, she deals with these issues every day.  

 

Narcolepsy is a disorder of the central nervous system characterized by the brains inability to control sleep-wake cycles.  Currently, there is no cure.

 

Knowing my sister's struggle with the disorder, I feel slightly ashamed. I take for granted my health, my body, and my ability to perform daily activities with ease. Seeing what my sister goes through on a daily basis has inspired me to run the 2016 Boston Marathon for Wake Up Narcolepsy.

 

Wake Up Narcolepsy is a not-for profit organization which is dedicated to support Narcolepsy awareness and research.  Any amount donated is much appreciated! 

 

I run for me. I run for Wake Up Narcolepsy and all those affected. I run for my sister. 

 

 

WAKE UP NARCOLEPSY INC wrote -

Narcolepsy is a serious, severely misunderstood and misdiagnosed medical disorder in desperate need of funding for research.  The funds raised during the Boston Marathon Fundraiser will help advance the understanding of narcolepsy to improve the lives of people suffering with narcolepsy.   

2016 marks the seventh consecutive year #TEAMWUN is heading to the starting line in Hopkinton. Beginning in 2010, each year the team has grown in both the number of runners and the average amount of donations raised by the team to benefit the work of Wake Up Narcolepsy.

We are deeply gratified by the generosity of our donors, many of them ongoing contributors to our shared cause. This support enables us to help speed narcolepsy diagnosis through greater awareness and provide research funds for improved treatment, prevention, and a cure. 

And we welcome the untiring efforts of our WUNners to both train for this historic race and reach out to friends, family, and colleagues for support. Their success in generating contributions not only funds our efforts to accelerate research; their efforts themselves raise awareness of narcolepsy, a devastating sleep disorder affecting 200,000 Americans and millions of people worldwide.

Learn more at http://www.wakeupnarcolepsy.org.

$11,145

MONEY RAISED
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  • Meatball Jabroni

     

  • Kales

    $30

  • James davis

    $100

  • Tim Ducharme

    $10

  • Anonymous

    $20

  • the Frags

    $100

  • Adam Guest

    $100

  • K Zaleski

    $15

  • Nolan S

    $250

  • Kristina Nash

    $50

  • Joe Hebert and Alex Bourret

    $10

  • Eibhlin and Thomas

     

  • Kathleen Cinelli

     

  • Ashley

    $100

  • Nick Elia

    $25

  • Megan

     

  • Nicole Moreno

     

  • Ali

    $75

  • Amanda Marr

    $20

  • Ed and Carol Cinelli

    $50

  • Kirk and Sue

     

  • Kathleen & Gerry

     

  • Lexi Romano

    $50

  • Karen Dumas

    $50

  • Tara and Mark Marr

    $50

  • Cindy DiTullio

     

  • Mary & John deVecchis

    $50

  • Fred and Jan Raffino

    $50

  • Eric Smolin

    $25

  • marian starr

    $100

  • H.O. Electric

    $100

  • Wesi, Dave, Kara, Meg

    $50

  • Steph Marr

    $25

  • Andrea Diloreti

    $50

  • Jean Moriarty

    $50

  • Chad K and Lauren V

    $25

  • Wini & Paul

    $250

  • Chris McCabe

    $25

  • Kevin Sapelly

    $25

  • Morgan & Pete Caraviello

    $50

  • Matt Flaherty

    $50

  • Anonymous

    $50

  • CPal & EdPal

    $30

  • Becca Lueth

    $50

  • Anonymous

     

  • Anonymous

    $500

  • Chris and Geoff Elia

    $50

  • Cousin Meg

     

  • Nick Starr

    $500

  • Nan and Tom

    $100

  • Alexis Nicholas

    $25

  • Holden & Laura

    $50

  • Brittany Viola

    $150

  • Bill & Kelly Dignam

    $50

  • Elaine & Jessica V

    $20

  • Mike & Lindsey Hardiman

    $50

  • Kathy Lindstrom

    $50

  • The Paint Bar LLC

    $90

  • Eileen and Dave Laraway

    $50

  • Matt Cappucci

    $100

  • Katie O'Connell

    $25

  • MaryLynn and Barry Jacobs

    $100

  • Christina

    $10

  • Pat

    $50

  • Ally ODonnell

    $25

  • Meredith Lindsey

    $50

  • Jon & Kate Sevigney

    $50

  • #pashtag16

    $200

  • Lynn Landry

    $50

  • Jazz Pharmaceuticals - company match

    $5,000

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149% Raised of $7,500 Goal

The Team: $76,641 TOTAL RAISED SO FAR

Fundraiser Title

Monica Gow

Amount Raised

$32,951

 

183% Raised of $18,000 Goal

Fundraiser Title

Mia Filippini

Amount Raised

$11,380

 

190% Raised of $6,000 Goal

Fundraiser Title

Nick Starr

Amount Raised

$11,145

 

149% Raised of $7,500 Goal

Fundraiser Title

Lauren Johnson

Amount Raised

$10,265

 

103% Raised of $10,000 Goal

Fundraiser Title

Rebecca Polenski

Amount Raised

$5,525

Fundraiser Title

Patrick Brown

Amount Raised

$5,150

 

103% Raised of $5,000 Goal

Fundraiser Title

WAKE UP NARCOLEPSY INC

Amount Raised

$225

 

0% Raised of $60,000 Goal

Fundraiser Title

George Bunker

Amount Raised

$0

Donor Comments

Jazz Pharmaceuticals - company match

Jazz Pharmaceuticals - company match

DONATION: $5,000

2 years ago

Lynn Landry

Lynn Landry

DONATION: $50

2 years ago

#pashtag16

#pashtag16

DONATION: $200

We love you Nick! :) thank you for running!! 2 years ago

Jon & Kate Sevigney

Jon & Kate Sevigney

DONATION: $50

2 years ago

Meredith Lindsey

Meredith Lindsey

DONATION: $50

2 years ago

Ally ODonnell

Ally ODonnell

DONATION: $25

Good luck nick! What an amazing accomplishment and awesome thing to do for your sister! Just think of how good that beer or burger or whatever you choose will be after the race (that's what got me through my marathon!!)! Good luck! 2 years ago

Pat

Pat

DONATION: $50

Go Nick! Wat to represent MBC! We're cheering for you in New York! 2 years ago

Christina

Christina

DONATION: $10

2 years ago

MaryLynn and Barry Jacobs

MaryLynn and Barry Jacobs

DONATION: $100

All for a good cause, so proud of you 2 years ago

Katie O'Connell

Katie O'Connell

DONATION: $25

Go Nick! Thank you for helping fund narcolepsy awareness and research! Happy running! 2 years ago