Skip to content
suzannerispoli's profile image - click for profile

Suzanne Rispoli's Fundraiser:

Wake Up Narcolepsy 2015 Boston Marathon Fundraiser - $80,000 Team Goal

Suzanne's Photo
Suzanne's Photo
Suzanne's Photo
Suzanne's Photo
Suzanne's Photo
Suzanne's Photo
Suzanne's Photo

BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: 2015 Boston Marathon

EVENT DATE: Apr 20, 2015

Suzanne Rispoli

THE STORY:

My mom, Suzanne Rispoli is running the Boston marathon to find a cure for me.

Please read my story.

My name is Andrew. I was diagnosed with narcolepsy when I was 9 years old (2011) after many hospitalizations, spinal taps, and including many inaccurate medical diagnosis. I’d like you to understand my disease so I will tell you about my life.

I need to sleep several times during the day, sometimes for long periods. Even with medication, I am tired and weak and have a hard time focusing on school homework and daily activities. If I do not take my medicines 4 times a day, I can exhibit cataplexy which is a loss of muscle tone.  This results in muscle collapse and sleep paralysis which makes me unable to move a muscle. I never really get a good sleep even though that is all I seem to do. I can have nightmares or night terrors which affect my sleep.

There is also an inability to move any muscle in my body while I am sleeping, but I can hear everything and am aware of those who are trying to get me up for school or dinner. I lose muscle control if I experience laughter, anger, anxiety or surprise which can cause me to drop to the ground into a sudden sleep. I can do homework, study, write and eat but may not remember having done them because I was sleeping awake.  

My hope is to one day feel normal again. But there is no cure as of today.  That can change with your donation to the wake-up narcolepsy foundation when my Mom runs for me and the money goes right to research.

The cause is still unknown.  But It is thought to be from a loss of a particular chemical in the brain called hypocriten or orexin. Children and people with narcolepsy need to experience the normal everyday activities of others, like playing sports, enjoying school or being able to work.

My dream is to wake up one day without the feeling exhausted, being able to run and play sports, without feeling dizzy, to be able to laugh out loud without people staring at me when my eyes droop and start to slur my words, and really to just be WIDE AWAKE enough to not miss out on the memories everyone else is making without me.

Will you donate so I can one day be cured and be able to have those everyday things in my life?

Thanks for understanding and listening to my story.

Andrew Rispoli- 12 years old

(posted by Andrew's Mom, Suzanne Rispoli)

 

WAKE UP NARCOLEPSY INC wrote -

Narcolepsy is a serious, severely misunderstood and misdiagnosed medical disorder in desperate need of funding for research.  The funds raised during the Boston Marathon Fundraiser will be donated directly to narcolepsy researchers trying to gain a deeper understanding about this serious medical disorder to improve the lives of people suffering with narcolepsy.

Learn more at http://www.wakeupnarcolepsy.org.

$12,903

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Flora and Anthony arcuri

    $200

  • Blue

    $100

  • Louis Trenta

    $100

  • Candice Pringle

    $30

  • The Tyukody Family

    $30

  • Kirscha Burgess

    $100

  • Tammy Trenta

    $200

  • Chris Ounjian

    $1,000

  • Barbara Turner

    $100

  • The Lenardo Family

     

  • Katya

    $25

  • Amira Brewart

    $100

  • Lauren Ounjian

    $100

  • Gary Borne

    $200

  • Anonymous

    $150

  • The LaFeirs

    $100

  • Myrna and Fred Rosenstein

    $50

  • Betsy and John Nisbet

    $50

  • Elisabeth and Don King

    $50

  • Mike and Pat Seppi

    $50

  • Rick, Lisa, Emma and Ryan Pisciotta

    $100

  • Dave & Susan Hoyt

    $150

  • Maurya and Bob

     

  • Annie & Anthony Basile

     

  • Laura & Jim Meraglia

    $100

  • Muffy Basile

    $500

  • Anonymous

     

  • wes and mary clare

    $200

  • Isabelle Alfano

    $50

  • Diane Ahern

    $100

  • RICH & DIANE NICEFORO

    $50

  • Pop-Pop and Grandma Rispoli

    $200

  • McLean Family

    $50

  • The Zahodnick Family

     

  • John & Linda Lozito

    $25

  • The Petras Family

    $25

  • Ralph & Gail Palumbo

     

  • Anonymous

    $20

  • Anne Marie and Roger Weber

     

  • RRichard and Janice Mayo

    $25

  • Shelly and Murray Lipsky

    $50

  • Jim & Pat Del Cioppo

    $25

  • MARGHY AND JIM ALLAN

    $100

  • Barbara & Frank Amato

    $40

  • Al and Judy Arnold

    $50

  • Vita Genova

    $25

  • Randy & Alan Bopp

    $25

  • Susan & Mike Doyle

    $25

  • Joe & Bonnie Gentesse

    $50

  • Barbara & Al Lilley

    $100

  • Vincent Esposito

    $500

  • Jim and Carol Guinee

    $25

  • Ben & Dawn White

    $100

  • Mona Reitman

    $20

  • Janice Hibbard

    $20

  • Alberta and Ron Parisi

    $25

  • Anita Diegnan

    $100

  • Carol & Robert Christiano

    $50

  • Marilyn and George Ounjian

    $100

  • Linda & George Petkov

    $25

  • Richard and Diann Catino

    $25

  • Dawn McCarthy

    $25

  • Andrews Mom

    $2,500

  • Dena & Maurice Rodriguez

    $50

  • Mike and Maria Dotro

    $25

  • Judie & Henry Salerno

    $25

  • Debbie and Bill Dewees

    $50

  • Mary Beth Caddigan

    $50

  • Anonymous

    $100

  • Lanier Famiy

    $150

  • Claudia Castellanos

    $100

  • Julie Flygare

    $25

  • Anonymous

    $50

  • VMware Foundation Matching Gift

    $2,600

  • Kurt Sakowski

    $50

  • Felicia K

    $20

  • Anonymous

     

  • Lisa Pisciotta Silva

    $50

  • Joanna amitrano

    $25

  • Brenda & Jim Dolan

    $100

  • Maria Garda Shroyer

    $20

  • The Guarneras

     

  • Debbie &Abby;

     

  • Priscilla Arbeiter

    $25

  • Rich Fanelli

    $100

  • Jeltemas

    $25

  • Colleen McCallion

    $100

  • Anonymous

    $100

  • The Tully Family

     

  •  
  •  
  •  
 

86% Raised of $15,000 Goal

The Team: $80,783 TOTAL RAISED SO FAR

Fundraiser Title

David Gow

Amount Raised

$38,724

 

77% Raised of $50,000 Goal

Fundraiser Title

Mia Filippini

Amount Raised

$13,136

 

131% Raised of $10,000 Goal

Fundraiser Title

Suzanne Rispoli

Amount Raised

$12,903

 

86% Raised of $15,000 Goal

Fundraiser Title

Lynn Stanfield

Amount Raised

$8,500

 

113% Raised of $7,500 Goal

Fundraiser Title

Justin Ferguson

Amount Raised

$5,820

 

78% Raised of $7,500 Goal

Fundraiser Title

WAKE UP NARCOLEPSY INC

Amount Raised

$1,300

 

2% Raised of $80,000 Goal

Fundraiser Title

Lauren Johnson

Amount Raised

$400

Donor Comments

The Tully Family

The Tully Family

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Colleen McCallion

Colleen McCallion

DONATION: $100

Suzanne you will always be a hero to me! congrats on a fine run! 2 years ago

Jeltemas

Jeltemas

DONATION: $25

2 years ago

Rich Fanelli

Rich Fanelli

DONATION: $100

2 years ago

Priscilla Arbeiter

Priscilla Arbeiter

DONATION: $25

2 years ago

Debbie &Abby;

Debbie &Abby;

2 years ago

The Guarneras

The Guarneras

So proud of you Sue!! What an accomplishment!! 2 years ago

Maria Garda Shroyer

Maria Garda Shroyer

DONATION: $20

2 years ago

Brenda & Jim Dolan

Brenda & Jim Dolan

DONATION: $100

good luck on today's run! You'll do great! 2 years ago