BENEFITING: WAKE UP NARCOLEPSY INC
ORGANIZER: WAKE UP NARCOLEPSY INC
EVENT: 2017 Boston Marathon
EVENT DATE: Apr 17, 2017
I am honored to be chosen as a member of the 2017 Wake Up Narcolepsy Boston Marathon Team! Between now and April 17, 2017 I will train to run the Boston Marathon while increasing awareness about narcolepsy and raising funds to support narcolepsy research.
Please join me in supporting families like our friends and neighbors, the Fabrizios. Their youngest son developed narcolepsy and cataplexy in 2009. Narcolepsy is a life-long disorder of the central nervous system characterized by the brain’s inability to control sleep-wake cycles. At various times throughout the day, people with Narcolepsy experience irresistible and sudden bouts of sleep, which can last from a few seconds to several minutes. This sleepiness is similar to how non-narcoleptics feel when going without sleep for 48-72 hours. Sleep episodes can occur at any time: at work or school, during a conversation, playing a game, eating a meal, or most dangerously, when driving an automobile or operating other types of machinery.
Running the Boston Marathon is a once in a lifetime opportunity for me and it is a privilege to be able to run it for the benefit of Wake Up Narcolepsy. The funds I raise for Wake Up Narcolepsy through the 2017 John Hancock Boston Marathon Non-Profit Program will be donated directly to narcolepsy researchers working to gain a deeper understanding of this serious medical disorder. Thank you for your generosity and support!
To learn more about Wake Up Narcolepsy, visit http://www.wakeupnarcolepsy.org.