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Jenna Brady's Fundraiser:

Wake Up Narcolepsy 2017 Boston Marathon

Jenna's Photo
Jenna's Photo

BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: 2017 Boston Marathon

EVENT DATE: Apr 17, 2017

Jenna Brady

THE STORY:

In November of 2015, my almost 4 year quest for a diagnosis finally came to an end when I was diagnosed with narcolepsy. After 4 years of struggling to function socially and academically I finally had an answer. Towards the second half of high school and into college my naps got longer and my grades got lower. I would lay on my bed after a normal day of school and fall asleep fully dressed with my shoelaces still tied, waking up the next morning with a facemask I was supposed to wash off crusted to my skin. Sitting at the dinner table when I went home for the weekend or listening to a normal lecture (even after a normal nights “sleep”) was torture. Any type of sitting still was unbearable. I would find myself a millisecond away from napping while waiting at a red light, my eyelids moving in slow motion, desperate to close. I was alive and I seemed healthy, but for years I was never truly awake. Even though I've been diagnosed, I will spend the rest of my life figuring out how to mange living with narcolepsy, the best medications to take, and the interactions with other medications and conditions. I’m running the 2017 Boston Marathon to increase awareness about narcolepsy and raise funds to support narcolepsy research. My diagnosis took 4 years but for some people with narcolepsy it can take a decade. I’m running to change the percentage of narcoleptics who are currently diagnosed from 25% to 100%. If you saw me on the street, you would have no idea that I’m not really here. But my eyes are already closing, I’m drifting off, my brain distant from conversations and lessons and people I love. I’m running the Boston Marathon because I want to increase empathy for those with an invisible illness. I want to help them discover that they’re not dumb, inadequate, inattentive, or lazy. I feel honored to have been given the opportunity to represent all people with narcolepsy, speak on their behalf, and spread awareness. We don’t have a choice about being present in our lives. But new research could change that. Thank you for your support. WAKE UP NARCOLEPSY INC wrote -

Wake Up Narcolepsy is excited to share that 2017 marks the eighth consectutive year that our Team WUNners will run the Boston Marathon to increase awareness about Narcolepsy and raise funds to support Narcolepsy research. Narcolepsy is a serious, severely misunderstood and misdiagnosed medical disorder in desperate need of funding for research. The funds raised by Wake Up Narcolepsy through the 2017 John Hancock Boston Marathon Non-Profit Program will be donated directly to Narcolepsy researchers working to gain a deeper understanding of this serioous medical disorder in order to improve the lives of those suffering from Narcolepsy.

We are deeply grateful to our dedicated team members who work tirelessly to both train for this prestigious athletic event, and reach out to friends, family and collegues for support. We are also grateful for the generousity of our donors, many of whom have supported the mission of Wake Up Narcolepsy since the beginning. Through the untiring efforts of our WUNners and our supporters, we are able to help speed Narcolepsy diagnosis through greater awareness and provide research funds for improved treatment, prevention and a cure.

To learn more about Wake Up Narcolepsy, visit our website at http://www.wakeupnarcolepsy.org.

 

 

$10,750

MONEY RAISED
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  • Lee Brady

    $250

  • Sarah Brady

    $25

  • Steve and Midge Carstensen

    $100

  • Patricia and Kyle

    $15

  • Christina and Scott Cairns

    $100

  • Luke

     

  • Anonymous

    $250

  • Janice E Schwartz

    $25

  • Jenn Janicki

    $50

  • Mary and Jim Osborne

    $100

  • Nathan Tsiperfal

    $25

  • Katie DeWood

    $100

  • Sheri kay

    $100

  • Taylor Madole

    $25

  • Madeline McLaughlin

    $50

  • David and Debra Baasch

    $100

  • Martha Rich

    $100

  • Paul Feuerstein

    $50

  • Lowell Brady Miller

    $25

  • Brad Gettleman

    $250

  • Jay Anderson

    $100

  • david and Jennifer Barget

    $250

  • A BIG FAN OF JENNA BRADY - WE LOVE YOU

    $500

  • Angel, Candee, Chelly, Connie and Donna

    $100

  • Sister Sister

    $25

  • Anonymous

    $500

  • Dr. Hoaglin & Dr. Lines

    $100

  • Anonymous

     

  • Anonymous

    $100

  • Anonymous

    $25

  • Ross and Connie Shapiro

    $25

  • Sammie Knight

    $10

  • Anonymous

     

  • GH2 Fitness (+Gow Match)

    $225

  • The Potvin's

    $100

  • Anonymous

    $105

  • Glenn Stern DDS

    $250

  • Anonymous

    $100

  • QuickSplint

    $500

  • Jenna Brady

    $50

  • Anne Samarawickrama

    $100

  • Sharon O'Shaughnessy

    $100

  • Lori Weiss

    $18

  • Dick and Beth Lightbown

    $25

  • S Gunawardena

    $20

  • Diane Powell

    $100

  • Anonymous

    $50

  • Anonymous

     

  • L Yeatts

    $100

  • Emily Bonner

    $30

  • Anonymous

     

  • Anonymous

    $100

  • Bridget Miels

    $50

  • Louis and Margaret Dennis

    $250

  • Amy Herlihy

     

  • Mike Schiavo

     

  • John & Jill Lawrence

    $100

  • Tom & Cyndi McDavitt

    $250

  • Bob & Kathy Mulhall

    $200

  • Sue Lanzillo

     

  • Two Bit Study Club

    $2,500

  • Mary Beth and Kevin Guckian

    $250

  • Buzz and Janet Raymond

    $100

  • Miguel

    $380

  • Denny Byrne and Nancy Ward

    $100

  • Nikki Green

    $200

  • Roger and Esther Macias

    $100

  • Smith family

    $250

  • Edwin A. Mcdonald

    $100

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143% Raised of $7,500 Goal

The Team: $54,195 TOTAL RAISED SO FAR

Fundraiser Title

Claire Carlson

Amount Raised

$12,701

 

127% Raised of $10,000 Goal

Fundraiser Title

Jenna Brady

Amount Raised

$10,750

 

143% Raised of $7,500 Goal

Fundraiser Title

Diane Sweet

Amount Raised

$10,500

 

105% Raised of $10,000 Goal

Fundraiser Title

Mark Wright

Amount Raised

$9,286

 

124% Raised of $7,500 Goal

Fundraiser Title

Rachel Levy

Amount Raised

$7,808

 

52% Raised of $15,000 Goal

Fundraiser Title

Glenn Burrow

Amount Raised

$3,150

 

105% Raised of $3,000 Goal

Fundraiser Title

WAKE UP NARCOLEPSY INC

Amount Raised

$0

 

0% Raised of $50,000 Goal

Donor Comments

Edwin A. Mcdonald

Edwin A. Mcdonald

DONATION: $100

Congratulations Jenna! What an enormous accomplishment! 2 years ago

Smith family

Smith family

DONATION: $250

run girl 2 years ago

Roger and Esther Macias

Roger and Esther Macias

DONATION: $100

Love you! Proud of you! 2 years ago

Nikki Green

Nikki Green

DONATION: $200

Run Jenna Run!! 2 years ago

Denny Byrne and Nancy Ward

Denny Byrne and Nancy Ward

DONATION: $100

2 years ago

Miguel

Miguel

DONATION: $380

2 years ago

Buzz and Janet Raymond

Buzz and Janet Raymond

DONATION: $100

2 years ago

Mary Beth and Kevin Guckian

Mary Beth and Kevin Guckian

DONATION: $250

For our daughter, Liz! 2 years ago

Two Bit Study Club

Two Bit Study Club

DONATION: $2,500

2 years ago

Sue Lanzillo

Sue Lanzillo

Way to go Jenna! My daughter is 12 and has narcolepsy. She is the strongest person I know and your write up reminds me of her. Good luck on Marathon day! 2 years ago