Skip to content
ebhopefoundation's profile image - click for profile

EB HOPE FOUNDATION's Fundraiser:

2015 Walk for EB...The Path to a Cure Starts Here!

EB HOPE FOUNDATION's Photo
EB HOPE FOUNDATION's Photo
EB HOPE FOUNDATION's Photo
EB HOPE FOUNDATION's Photo
EB HOPE FOUNDATION's Photo

BENEFITING: EB HOPE FOUNDATION

EVENT DATE: May 09, 2015

THE STORY:

Carson Kissell, the son of Kristy & David, was born on April 7, 2007 with a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings.

Inspired by this little boy so full of life, family and friends started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families.

Donations to the walk will benefit the EB Hope Foundation, a 501C3 non-profit organization. The EB Hope Foundation works to spread EB awareness and support organizations committed to helping EB families and funding research efforts to find a cure. Click here to learn more about the EB Hope Foundation.

This year's Walk for EB is taking place on Saturday, May 9 at Miami Whitewater Forest in Cincinnati, Ohio. Activities and registration begins at 9:00 a.m. with the walk starting at 10:00 a.m. 

We hope you will invite your family and friends, and be a part of this year’s Walk for EB.

Visit www.WalkforEB.org to learn more.

DONATE

To This Fundraiser

$2,335

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

    $100

  • Abby Nalabolu

    $25

  • Anonymous

    $25

  • Ben Wilinsky

     

  • Jason Pinkstaff

     

  • Anonymous

     

  • Mary Frailey

     

  • Tiffany Williams

     

  • Jen Krasowski

     

  • Ryan and Catherine Lopez

    $50

  • Josie & company

    $50

  • Anonymous

     

  • Liz and Logan Cummins

    $50

  • Annie Bidwell

     

  • Stacey Recht

     

  • Lon and Robin Baker Carpenter

    $100

  • Roger Lovrak

    $50

  • Doug Adolph

     

  • Mari Fecarotta

    $25

  • Beth Burlage Field

    $25

  • Joe and Toni Schneider

    $25

  • Deb & Mike Cook

    $50

  • Erin Stautberg

    $25

  • Vanderburghs

     

  • matt fallon rosie boyd & teague

     

  • Tracy Winkler

    $100

  • Sean Ater

    $10

  • Gee

    $25

  • The Kovacs Family

     

  • Noelle & Keith Border

    $50

  • Anonymous

     

  • Janine Triano

    $200

  •  
  •  
  •  
 

23% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $2,335 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David DuVall

Amount Raised

$1,350

 

135% Raised of $1,000 Goal

Fundraiser Title

David, Kristy, Carson, Charlie, and...

Amount Raised

$735

 

74% Raised of $1,000 Goal

Fundraiser Title

Casey Trimble

Amount Raised

$200

 

20% Raised of $1,000 Goal

Fundraiser Title

Jonathan Kissell

Amount Raised

$50

 

5% Raised of $1,000 Goal

Fundraiser Title

EB HOPE FOUNDATION

Amount Raised

$0

 

0% Raised of $10,000 Goal

Fundraiser Title

Ben Wilinsky

Amount Raised

$0

Donor Comments

Janine Triano

Janine Triano

DONATION: $200

2 years ago

Anonymous

ANONYMOUS

2 years ago

Noelle & Keith Border

Noelle & Keith Border

DONATION: $50

2 years ago

The Kovacs Family

The Kovacs Family

2 years ago

Gee

Gee

DONATION: $25

2 years ago

Sean Ater

Sean Ater

DONATION: $10

2 years ago

Tracy Winkler

Tracy Winkler

DONATION: $100

2 years ago

matt fallon rosie boyd & teague

matt fallon rosie boyd & teague

sorry we will miss the walk, sending our love 2 years ago

Vanderburghs

Vanderburghs

2 years ago

Erin Stautberg

Erin Stautberg

DONATION: $25

2 years ago