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Mario Ortegon's Fundraiser:

Walking for Elliot

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Mario Ortegon

THE STORY:

The team "Walking for Elliot" will be at the first-ever Walk-Run-N-Roll for the Transverse Myelitis Association (TMA) on October 6, 2013, at McCollum Park in Downers Grove, Illinois.

Mario Ortegon, Elliot's father, remembers the day that Transverse Myelitis (TM) and the related disorder, Acute Disseminated Encephalomyelitis (ADEM), changed his family forever:

It was November 11, 2002. I was in bed when the phone call came. It was my ex-wife calling me to say our son Elliot was in the hospital and I should come right away. "What’s wrong?" I asked. "The doctors don't know yet." Little did I know how poignant those words would be. "He's in intensive care. He's not able to breathe on his own, and he can't move any part of his body." she said.

At that moment in time I couldn't imagine Elliot not being able to move. He was so full of life, a vibrant ten-year-old in the fifth grade, who loved sports, and he played all of them. There was always a game to play and he always had practice to be at. There was baseball, football, soccer, hockey, and volleyball. Then there was band, he played the violin, there were also the talent shows. He was practicing to sing "Hero" by Enrique Inglesias on stage in front of his entire school.

I couldn't be any prouder of him! He is the most courageous person I have ever met. In the blink of an eye our lives were forever changed. Diagnosis was not swift for him. There were MRI's, cat scans, blood test and spinal taps all with no answer. After three weeks in intensive care I first heard the words transverse myelitis and acute disseminated encephalomyelitis. It's an autoimmune disorder. "What caused it?" I asked. "We don't know," he said. "Will he recover?" I said. "To be honest with you I've never seen a case this severe. I just don't know."

He spent the next year in the hospital. He is paralyzed from the tongue down, and is unable to do anything for himself. He has twenty four hour nursing care in my home and now has out lived his life expectancy for people on ventilator.

I want to help the TMA because first and foremost I want a cure. I want to give the scientists and doctors any and all tools known to mankind to find the answers as to why and how this happens to the body. Then maybe the puzzle and can solved as how to repair and cure this devastating disorder.

DONATE

To This Fundraiser

$4,600

MONEY RAISED
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  • Nancy Dove and Jon Kartman

    $25

  • Nancy G

     

  • Melinda Graham and Family

    $50

  • Sandy Niemi

    $25

  • Eva Ortegon & Bridgette Silverman

    $200

  • Daniel and Christina Ortegon

    $200

  • joe ortegon

    $100

  • Anonymous

    $200

  • Caroline Zurawski

    $25

  • Helen Lowery

    $20

  • Judy Santiago

    $25

  • Lori Farabow

    $25

  • Irene vega

    $100

  • Kevin Eng

    $25

  • Randy Jefferies

    $100

  • Steve Briggs

    $200

  • Kim Lavin

    $50

  • Jill & Bob McAllister

    $100

  • Anonymous

    $100

  • Anonymous

    $185

  • Greg Brenner

    $100

  • Anonymous

    $50

  • Paula Maggio

    $200

  • Anonymous

    $25

  • Tony DeLorenzo

    $25

  • Diane Morefield

    $100

  • Jim & Carly Edgar

    $50

  • Bob Britt

    $100

  • Ruth Figueroa

    $50

  • CANDELARIO CASTILLO

    $100

  • Joe and Nancy Cochand

    $100

  • Rick & Deb LoBianco

    $100

  • Mario Ortegon

    $50

  • Don and Angela Myles

    $500

  • Kim Balde

    $50

  • Betti and Al Suarez

    $50

  • Anonymous

    $25

  • Paul Bancherau

    $125

  • Janet Millis

    $50

  • Gerry

    $100

  • Melissa and Andrew

    $20

  • Franco&Leslie; Giannese

    $250

  • Courteney

    $20

  • Adrian & Ines Bahena

    $30

  • medina family

     

  • Kiara & Oscar

    $50

  • silvia and adam banda

    $50

  • Julissa, Randy, George, Ivan

    $46

  • Kaylie and Danny Sullivan

    $25

  • Anonymous

    $20

  • David Hogin

    $100

  • Nora & Tony

    $100

  • Auntie Nora & Tony

    $100

  • YC

    $50

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Fundraise for this Campaign

The Team: $4,600 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Irene Vega

Amount Raised

$1,755

Fundraiser Title

Mario Ortegon

Amount Raised

$1,590

Fundraiser Title

Judy Santiago

Amount Raised

$441

Fundraiser Title

Jake Ortegon

Amount Raised

$400

Fundraiser Title

Elliot Ortegon

Amount Raised

$150

Fundraiser Title

Paul Bancherau

Amount Raised

$139

Fundraiser Title

Mario Ortegon

Amount Raised

$125

Fundraiser Title

Nicole Monique

Amount Raised

$0

Donor Comments

YC

YC

DONATION: $50

4 years ago

Auntie Nora & Tony

Auntie Nora & Tony

DONATION: $100

Dear Elliot, GOD Bless you!! You are always in our thoughts and prayers. We love you!! 4 years ago

Nora & Tony

Nora & Tony

DONATION: $100

Mario, you are the greatest father in the world. You and Elliot are in our prayers everyday! We love you! 4 years ago

David Hogin

David Hogin

DONATION: $100

4 years ago

Anonymous

ANONYMOUS

DONATION: $20

4 years ago

Kaylie and Danny Sullivan

Kaylie and Danny Sullivan

DONATION: $25

4 years ago

Julissa, Randy, George, Ivan

Julissa, Randy, George, Ivan

DONATION: $46

Hi Elliot, We wish the best for you and we hope that there will be a cure for you soon. God Bless u. 4 years ago

silvia and adam banda

silvia and adam banda

DONATION: $50

4 years ago

Kiara & Oscar

Kiara & Oscar

DONATION: $50

4 years ago

medina family

medina family

4 years ago