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Shari Posey's Fundraiser:

Walk with Lewy! Donate to Lewy Body Dementia Awareness & Research

Shari's Photo
Shari's Photo
Shari's Photo
Shari's Photo
Shari's Photo
 

Shari Posey via Crowdrise
June 08, 2015

We did it! We walked 500 miles in 35 days for the Lewy Body Dementia Assn. But it's not too late to donate! http://www.walkwithlewy.com  See more
Shari Posey

THE STORY:

We just finished walking 500 miles on the Camino de Santiago (The Way of St. James) in Spain. It took us 35 days of walking (3 days off during that time) to raise money and awareness for the Lewy Body Dementia Association. Lewy Body Dementia (LBD) is the second most-common form of dementia after Alzheimer's, yet it is widely unknown even in the medical community. During our walk, we talked to hundreds of people about the disease and our blog is on-going. (Blog about our walk and LBD--www.walkwithlewy.com)

Even though the walk is over, we are still raising money for the Association!

My Dad, Chuck Truckenbrodt, was diagnosed with LBD in 2012 but had been misdiagnosed for at least five years before that. For several years his primary care doctor chalked up his symptoms to old age. As symptoms worsened we became very frustrated by the "old age" diagnosis so we took Dad to several doctors around the country to find an answer. Finally, my Dad was diagnosed with LBD at Vanderbilt University Medical Center and started getting specialised care. We feel if his primary care doctor knew the signs of LBD, Dad could have gotten treatment early and maybe delayed the progression of the disease. LBD is a double whammy...its symptoms include dementia plus Parksinson's Disease!

Dad loved walking and running! Before he showed signs of Parkinson's Disease he was an avid runner. Even with pretty severe PD he ran a 5k in April 2013! He came in last place in the race but demonstrated his will to try to live a full life with this terrible disease.

We will be having several mini-fundraising events leading up to the start of our Walk with Lewy on the Camino de Santiago. But of course, you can donate any time--you don't have to wait until we start walking. 100% of your donation will go to LBDA minus a small processing fee from CrowdRise.

Dad passed away July 25, 2014 with complications from LBD. When I came up with the idea to walk the Camino de Santiago to raise funds for the Lewy Body Dementia Association I fantasized about him being able to walk a portion of it with us because up until two weeks before his death, he could walk a bit. He knew our walk will help future victims of this horrible disease and I know he will be with us in spirit!

***The photos are of my Dad as his Lewy Body Dementia progressed over the past 7 years from when he was able to run part of the Chicago Marathon with me and my sister; walking his last 5k in 2013; cheering me and my sisters on from the sidelines of a half marathon in 2013; and finally to July 2014 in the hospital enjoying a martini & "walking" his dog, Lucy, before moving to hospice where he passed away peacefully.

PLEASE VISIT MY BLOG FOR MORE INFORMATION ABOUT OUR WALK FOR LEWY BODY DEMENTIA...

www.walkwithlewy.com

Thank you!

DONATE

To This Fundraiser

$1,555

MONEY RAISED
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  • Anonymous

    $500

  • Anonymous

    $20

  • D&D

    $100

  • Lisa

    $100

  • Bill L.

    $50

  • Anonymous

    $50

  • David Schneider

    $100

  • Elizabeth Gresock

     

  • Lynn Burris

    $50

  • Lynn Burris

    $50

  • Carla Truckenbrodt

    $100

  • Claire Clark

    $100

  • troy galloway

    $50

  • the High family

    $40

  • Kerri and Byron

    $50

  • A Fellow Walker from Australia

    $5

  • Fellow Walkers from England

    $10

  • Cecile Iden & Zola Cadwallader

    $55

  • Sandy & Rich

    $100

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16% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $1,555 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Sandy & Rich

Sandy & Rich

DONATION: $100

Chuck Truckenbrodt 3 years ago

Cecile Iden & Zola Cadwallader

Cecile Iden & Zola Cadwallader

DONATION: $55

From Cecile from Wyoming and grandmother. 3 years ago

Fellow Walkers from England

Fellow Walkers from England

DONATION: $10

3 years ago

A Fellow Walker from Australia

A Fellow Walker from Australia

DONATION: $5

3 years ago

Kerri and Byron

Kerri and Byron

DONATION: $50

3 years ago

the High family

the High family

DONATION: $40

To my uncle who was way too vibrant to leave so soon. 3 years ago

troy galloway

troy galloway

DONATION: $50

3 years ago

Claire Clark

Claire Clark

DONATION: $100

3 years ago

Carla Truckenbrodt

Carla Truckenbrodt

DONATION: $100

In memory of Chuck Truckenbrodt, our dad. Shari & Bob, have a great time and thank you for your efforts in raising awareness of Lewy Body Dementia and for raising money for research and caregiver help through the LBDA! Love you guys~ 3 years ago

Lynn Burris

Lynn Burris

DONATION: $50

3 years ago