Shari Posey via Crowdrise
June 08, 2015
BENEFITING: LEWY BODY DEMENTIA ASSOCIATION INC
We just finished walking 500 miles on the Camino de Santiago (The Way of St. James) in Spain. It took us 35 days of walking (3 days off during that time) to raise money and awareness for the Lewy Body Dementia Association. Lewy Body Dementia (LBD) is the second most-common form of dementia after Alzheimer's, yet it is widely unknown even in the medical community. During our walk, we talked to hundreds of people about the disease and our blog is on-going. (Blog about our walk and LBD--www.walkwithlewy.com)
Even though the walk is over, we are still raising money for the Association!
My Dad, Chuck Truckenbrodt, was diagnosed with LBD in 2012 but had been misdiagnosed for at least five years before that. For several years his primary care doctor chalked up his symptoms to old age. As symptoms worsened we became very frustrated by the "old age" diagnosis so we took Dad to several doctors around the country to find an answer. Finally, my Dad was diagnosed with LBD at Vanderbilt University Medical Center and started getting specialised care. We feel if his primary care doctor knew the signs of LBD, Dad could have gotten treatment early and maybe delayed the progression of the disease. LBD is a double whammy...its symptoms include dementia plus Parksinson's Disease!
Dad loved walking and running! Before he showed signs of Parkinson's Disease he was an avid runner. Even with pretty severe PD he ran a 5k in April 2013! He came in last place in the race but demonstrated his will to try to live a full life with this terrible disease.
We will be having several mini-fundraising events leading up to the start of our Walk with Lewy on the Camino de Santiago. But of course, you can donate any time--you don't have to wait until we start walking. 100% of your donation will go to LBDA minus a small processing fee from CrowdRise.
Dad passed away July 25, 2014 with complications from LBD. When I came up with the idea to walk the Camino de Santiago to raise funds for the Lewy Body Dementia Association I fantasized about him being able to walk a portion of it with us because up until two weeks before his death, he could walk a bit. He knew our walk will help future victims of this horrible disease and I know he will be with us in spirit!
***The photos are of my Dad as his Lewy Body Dementia progressed over the past 7 years from when he was able to run part of the Chicago Marathon with me and my sister; walking his last 5k in 2013; cheering me and my sisters on from the sidelines of a half marathon in 2013; and finally to July 2014 in the hospital enjoying a martini & "walking" his dog, Lucy, before moving to hospice where he passed away peacefully.
PLEASE VISIT MY BLOG FOR MORE INFORMATION ABOUT OUR WALK FOR LEWY BODY DEMENTIA...