Organized by: Kristen Corkery
Kristen Corkery via Crowdrise
June 06, 2014
If you haven’t met Walter John Lackaye, you should. He is the sweetest, happiest baby boy whose smile can melt anyone’s heart. Walter’s story has touched many of us in ways we can’t even describe.
At 39 weeks pregnant, Sarah and Dan learned that Walter’s heart rate was too low and he would have to be delivered as soon as possible so that he could be closely monitored. Sarah was transported to Westchester Medical Center and Walter was born via C section on December 19, 2013. He was perfect in every way, making it hard for them to wrap their heads around him having a heart condition.
Walter was diagnosed with heart block that slowed his heart rate, and he required the placement of a pacemaker at only a few days old. In many similar cases, the baby’s mother has an underlying autoimmune condition doctors can point to as the cause. In Walter’s case, there was no such condition, which made it even scarier.
Doctors felt it could be idiopathic, which means they really don’t know the cause. In addition, they were worried that Walter could have a syndrome called Long QT, which could cause sudden and potentially lethal cardiac events. The type they believed Walter might have is most deadly when a person is asleep. This news was devastating to his parents, and their family and friends. Additional lab work also came back inconclusive. Luckily, he has intelligent and well informed parents that continued to search for an answer.
After a couple of different opinions, the three of them ended up at the Mayo Clinic in the hands of Dr. Michael Ackerman who specializes in Long QT. Thanks to his extensive research over the past 12 years, Dan and Sarah are finally able to sleep (sometimes anyway). After days of testing and monitoring, they are swiftly moving away from the frightening Long QT diagnosis!
On June 29, 2014 two of his cousins will be participating in the ITU World Triathlon in Chicago. This seemed like the perfect opportunity to allow everyone who has been touched by his story to donate toward the research that has helped our Walter, and so many other children.
This fundraising page has been created in honor of our cousin, Walter, and his parents. Having seen on a personal level how research can completely change lives, Sarah and Dan wish to have all proceeds go directly to the research of Dr. Ackerman at the Mayo clinic.
In the words of Sarah “ I can’t tell how helpful Mayo is to thousands of other parents who go to bed every night praying like we did for their babies.”
With Love and Gratitude,
Kristen Corkery and Amanda Lackaye