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Cornelia de Lange Syndrome Foundation, Inc.'s Fundraiser:

West Point Triathlon

Cornelia de Lange Syndrome Foundation, Inc.'s Photo
Cornelia de Lange Syndrome Foundation, Inc.'s Photo

BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.

EVENT DATE: Aug 15, 2015

THE STORY:

For several years Todd has raced in the West Point Triathlon in support of a charitable endeavor that is close to his family. The 2015 races are August 15th and 16th and is also proud to say that hischildren (Dylan 13 and Hope 5) will be running the kids’ race in support of their cousin and other CdLS kids. Monte is 27 months old and was born with Cornelia de Lange Syndrome (CdLS), which is a rare genetic disorder that affects approximately 1 in every 10,000 people. This syndrome causes a range of physical, cognitive, and medical challenges. Monte is significantly small for his age (27 months old/ approximately 16 lbs.), has only two functional fingers on his right hand, a severe hearing loss in both ears, and is delayed in most areas of his development. With the help of weekly physical, occupational, and speech therapies Monte has been making continual progress in all areas of his development. Monte is currently learning to walk with the assistance of a gait trainer and he is learning several basic “signs” to communicate his needs, among many other skills. So far Monte’s greatest success has been his attitude and outlook on life. He loves meal time especially ice cream, spaghetti, French fries, scrambled eggs, and chocolate cake. He loves the water, toy rings, music, lights, and sounds. He likes being outside on a warm summer day, playing in a sand box, and going on the swing set. Monte likes to laugh and smile and loves just about anyone who has ever held him in their arms. 

DONATE

To This Fundraiser

$1,840

MONEY RAISED
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  • The Lojas

    $50

  • Fallon

    $15

  • Cristi Navarro

    $25

  • McKay Family

    $50

  • Jones Family

    $100

  • Ginger and Rick Labus

    $100

  • Fitzmaurice Family

    $50

  • Linn Henderson

    $100

  • Dave & Becky Telischak

    $100

  • Christine and Michael Cahill

    $25

  • The Ippolito Family

    $100

  • Jackie Jones

    $50

  • Jim & Mary Berrigan

    $100

  • Senter Family

    $35

  • The McDonagh's

    $50

  • Daisy, Shamus, Connor

    $30

  • Margaret Burnett

     

  • Jen & Marty McCabe

    $25

  • The Martins Family

    $100

  • The Shields Family

    $75

  • Nicholson Family

    $40

  • Con & Dean

    $50

  • Newell Family

    $50

  • Dingman family

    $50

  • Vance Lee

    $50

  • Bill and Barbara Berrigan

    $100

  • Trish Weyenberg

    $25

  • Elizabeth DeFurio

    $25

  • The Alberti Family

    $50

  • Carol, Ron & Jen Telischak

    $100

  • Josh, Mary, Harper and Drew Labus

    $100

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Fundraise for this Campaign

The Team: $1,840 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Jones

Amount Raised

$1,840

 

61% Raised of $3,000 Goal

Fundraiser Title

Nicole White

Amount Raised

$0

Donor Comments

Josh, Mary, Harper and Drew Labus

Josh, Mary, Harper and Drew Labus

DONATION: $100

2 years ago

Carol, Ron & Jen Telischak

Carol, Ron & Jen Telischak

DONATION: $100

2 years ago

The Alberti Family

The Alberti Family

DONATION: $50

2 years ago

Elizabeth DeFurio

Elizabeth DeFurio

DONATION: $25

2 years ago

Trish Weyenberg

Trish Weyenberg

DONATION: $25

2 years ago

Bill and Barbara Berrigan

Bill and Barbara Berrigan

DONATION: $100

2 years ago

Vance Lee

Vance Lee

DONATION: $50

2 years ago

Dingman family

Dingman family

DONATION: $50

2 years ago

Newell Family

Newell Family

DONATION: $50

2 years ago

Con & Dean

Con & Dean

DONATION: $50

2 years ago