Wheels for E
Organized by: Jeanette Castonguay
I would like to introduce you to a very special boy, Ethan. Ethan is a happy, energetic and sometimes stubborn 7 year old boy. Rene and Jen Amador are parents to Ethan, his twin brother Matthew and 9 year old sister Claire. Ethan had a rough start to life. Due to complications from a twin to twin transfusion Ethan suffered greatly and was in intensive care for the first 6 weeks of his life. At just 24 hours old Ethan was placed on life support with an uncertain future. However, Ethan being the fighter he is survived and thrived with the support of the doctors and nurses who cared for him. When Ethan was just 3 months old he was diagnosed with Auditory Neuropathy, Ethan was deaf. The family was devastated but not broken, they carried on and learned to live a new normal. When Ethan was just 2 years old he was diagnosed with quadriplegic Cerebral Palsy. This meant that all limbs were affected and movement was spastic and sometime involuntary. The family again was devastated but they did not let the Cerebral Palsy diagnosis define who Ethan is. As hard as it was for the Amador’s to see their son struggle, they learned how to be advocates for Ethan and make sure he had everything he needed in life to be successful.
Ethan is unable to sit or stand unassisted, and he requires multiple pieces of equipment to help him navigate the world. Ethan needs support 100% of the time and receives multiple therapies weekly to help him get stronger. Although Ethan has been afflicted with Cerebral Palsy, he enjoys life to the fullest! Ethan loves movies, swimming, therapeutic horseback riding and playing with his brother and sister just like most kids his age. You can often see him and the rest of the Amador Family engaging in various community activities, sports and events. For the past 2 years Ethan has participated in the MR8 Challenger baseball league in Savin Hill Dorchester. The Amador Family can also be seen bringing awareness to causes close to their hearts. They attend Cerebral Palsy events, most recently the Annual CP of MA holiday party, and Ethan’s dad Rene ran the BAA half marathon in June 2014 as a part of the Dana Farber Team.
It has always been a priority of the Amador family to include Ethan and make life as accessible as possible. As Ethan gets older and grows bigger so do the challenges. Simple things like going on family trips become harder. The family right now physically lifts Ethan’s wheelchair in and out of their van every time they have an outing, go to school or even just going to the store. As Ethan grows big, the wheelchairs do to. The family is in need of a fully accessible wheelchair van. To the Amador family, their van is a lifeline to the community and to opportunities available for Ethan. The cost of adapted vans can start at $40,000, for which the family is saving. Both parents work, but with various medical expenses, therapies, and monthly bills they have been unable to save enough to purchase the fully adapted van. Any donation that you can make is greatly appreciated!