Organized by: Megan Howard
Childrens OI Family Resource
As many of you know, our oldest son, Lincoln, was diagnosed with Osteogenesis Imperfecta (OI) shortly after his birth. Since OI is a rare disease, we were having trouble getting concrete information from physicians about his prognosis and what we could expect as he got older. That all changed when we first visited the OI Clinic in Omaha. Under their guidance and treatment plan, Lincoln has had a wonderful 3 ½ years, and we’re excited to see him continue to grow and thrive.
We've been very fortunate that Lincoln's case has been relatively mild, but there are some people that require special accommodations beyond their means. Families lacking these resources can turn to this foundation for assistance.