Skip to content
rylanhubenak's profile image - click for profile

Rylan Hubenak's Fundraiser:

HOPE at The Woodlands Marathon

Rylan's Photo
Rylan Hubenak

THE STORY:

My Friend Will was diagnosed with Batten Disease when we were both 6 years old.  Batten has taken my friend away from me.  Will and I used to be able to play together doing the things that we were both interested in.  In the past 6 years Batten's has completely changed Will.  He can no longer do the same things that I can.  It makes me sad that he can't play paintball or ride scooters or do any of the other things I like to do with my friends. The one thing we can still do together is run.  So we are both running the 2K at the Woodlands Marathon.  

We are very close to finding a cure that will bring my friend back.  Any donation helps.  Thank you very much for helping me out with my goal of beating this disease that has taken my friend from me.

Rylan Hubenak

 HOPE-The Will Herndon Research Fund wrote -

The Will Herndon Research Fund was founded in 2009 to raise awarness and funds to treat and cure juvenile Batten Disease.  Will Herndon was just 6 years old when he was diagnosed with a fatal, genetic diesase.  Imagine blindness, Alzheimer's, and Parkinson's diesases all rolled into one.  His family was told nothing could be done to SAVE WILL.  Relying soley on their faith and the support of thousands in The Woodlands' community, they set out on a journey that has raised $3.2 million to date. These contributions have been used to fund groundbreaking research at The Jan and Dan Duncan Neurological Research Institute at Texas Children's Hospital.  Scientists, funded by HOPE, have discovered six different drug compounds that could slow the progression of the disease.  Two of these compounds are under further evaluation, with the hopes of being approved by the FDA for a clinical trial.   Our mission is simple: find a treatment and a cure that gives Will a promising future!  Thank you for believing in HOPE!

DONATE

To This Fundraiser

$750

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Kim & Devin Hanson

    $50

  • (Aunt) Clara Dahlstrom

    $50

  • Joey Young

    $25

  • Gammo

    $100

  • Leslie/Mike Roop

    $150

  • Nicholosi

    $100

  • Kathy Strader

    $25

  • Marmie and Goshie

    $100

  • Aunt Stacey

    $50

  • Alex & Tonya Leiva

     

  • Suzanne and Paul Kobza

    $50

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $7,101 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jake and Gracie Lile

Amount Raised

$2,025

 

135% Raised of $1,500 Goal

Fundraiser Title

Cash McDonald

Amount Raised

$1,575

Fundraiser Title

Dave Barta

Amount Raised

$1,125

 

113% Raised of $1,000 Goal

Fundraiser Title

Madelyn and Billy Murphy

Amount Raised

$850

Fundraiser Title

Rylan Hubenak

Amount Raised

$750

Fundraiser Title

Ashley Byers

Amount Raised

$551

 

110% Raised of $500 Goal

Fundraiser Title

Abby Ross

Amount Raised

$225

 

113% Raised of $200 Goal

Fundraiser Title

Francisco Quiroz

Amount Raised

$0

 

0% Raised of $500 Goal

Donor Comments

Suzanne and Paul Kobza

Suzanne and Paul Kobza

DONATION: $50

2 years ago

Alex & Tonya Leiva

Alex & Tonya Leiva

2 years ago

Aunt Stacey

Aunt Stacey

DONATION: $50

2 years ago

Marmie and Goshie

Marmie and Goshie

DONATION: $100

2 years ago

Kathy Strader

Kathy Strader

DONATION: $25

2 years ago

Nicholosi

Nicholosi

DONATION: $100

2 years ago

Leslie/Mike Roop

Leslie/Mike Roop

DONATION: $150

2 years ago

Gammo

Gammo

DONATION: $100

2 years ago

Joey Young

Joey Young

DONATION: $25

2 years ago

(Aunt) Clara Dahlstrom

(Aunt) Clara Dahlstrom

DONATION: $50

2 years ago