I have cone-rod dystrophy. You probably never heard of it. It's not good. I've been slowly losing vision over the years, but so far I am lucky, I can function pretty well. Could keep relatively steady or could accelerate. No way to find out.
Here's the deal. I am incredibly lucky to be running the Boston Marathon on April 16. It's been a dream of mine. I am running with the Team With Vision, which raises money for the Massacusetts Association for the Blind and Visually Impaired. MAB helps people who are visually impaired continue with their lives. It's a big deal, losing your vision. MAB is awesome.
I need to raise money for my team. A lot of money. $7500. I need your help. This is personal. Not only do I have vision impairment, my father in law has macular degeneration, one of my young cousins has Stargardt Disease (a serious vision deterioration), and another cousin also has vision deterioration. This is real for me and for my family.
Please help me and be generous. I won't bug you for any of my causes for at least another month. Please donate to the cause instead of giving Karen and me birthday or holiday presents. Give up Starbucks for a week and donate to us.
The folks at the Boston Marathon are using a special device to time me in the race. It is called a calendar. If you donate enough and we reach our goal, maybe I will get so inspired that I can break 6 hours. Which is pitiful compared to the Kenyans but pretty good for me.
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