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Greater Chicago Fragile X's Fundraiser:

Xtra Milers Running for Fragile X

Greater Chicago's Photo
Greater Chicago's Photo
Greater Chicago's Photo

BENEFITING: National Fragile X Foundation

EVENT DATE: Nov 09, 2014

Greater Chicago Fragile X

THE STORY:

November 9, 2014 our incredible team will complete the 2nd Naperville Half/Marathon to benefit the Greater Chicago Fragile X Group and the National Fragile X Foundation. Including our very own Fragile X Xpert, Dr. Elizabeth Berry-Kravis!

Fragile X is a family of disorders, including Fragile X Syndrome, FXTAS, and FXPOI.

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Fragile X is the leading cause of inherited mental impairment and the leading known genetic cause of Autism. As many as 1:151 women are carriers of Fragile X. 1:3600-4000 boys /1:4000-6000 girls are born with Fragile X Syndrome.

FXTAS(Fragile X Associated Tremor/Ataxia Syndrome) affects those with the pre-mutation. It is an “adult onset” neurodegenerative disorder, occurring more commonly in males than females. Onset is usually over 50 years of age, and most individuals had no related medical, developmental or neurological problems prior to the appearance of FXTAS symptoms. Females comprise only a small part of the FXTAS population, and their symptoms tend to be less severe.

FXPOI(Fragile X Associate Primary Ovarian Insufficiency)affects pre-mutation females. They may experience infertility and pre-mature menopause.

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality.

Your donation will help support local events as well as support the National Fragile X Foundation in support of their mission.

The Mission of the National Fragile X Foundation:

The National Fragile X Foundation unites the Fragile X community to
◦Enrich lives through educational and emotional support
◦Promote public and professional awareness
◦Advance research toward improved treatments and a cure for Fragile X

Thank you for your support!

DONATE

To This Fundraiser

$13,643

MONEY RAISED
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  • Steve and Emily Bartell

    $25

  • The Hill family

    $50

  • Farr Family

    $50

  • Ilene & Mark Dell'Acqua

     

  • Meryl Lipton

    $25

  • Sue Ellen Krause

    $100

  • Tiina

    $100

  • Matt Hill

    $50

  • The Vaillancourts

     

  • The Ozur Bass Family

     

  • Sue & Butch

    $50

  • Jefson Family

    $50

  • The Lang Family

    $200

  • Bobbi and Jim Rathmell

    $50

  • Julie, Patrick, Quinn & Jane Pollard

     

  • Anonymous

    $420

  • Dejan Budimirovic

    $50

  • Robin Blitz

     

  • Debby and Rick Hill

    $50

  • Koujaian Family

    $100

  • Dick and Connie Berry

    $200

  • Dejan Budimirovic

    $50

  • Sarah A Frech

    $100

  • Julie Miller

    $15

  • The McCabe Family

    $30

  • Pat & Mike

     

  • The Seattle chapter of Beta Omicron Beta

     

  • Steve, Gail, and Dave

    $50

  • Betty & Mike Pierret

    $200

  • Dave & Sue Rasich

     

  • Suzy & Sam

    $30

  • Soorya Family

    $50

  • Steve, Gail, and Dave

    $100

  • Dan and Kay

    $50

  • Karen and Steve Riley

    $100

  • Dyna, Joseph, Maceo & Levon Mendoza

    $25

  • Kathy Allard

    $50

  • Mike & Jennifer Bauer

    $100

  • Gloria Javor

    $25

  • The Tobias Family

    $200

  • Laura and Ed Garrett

     

  • Andrea & Ted Hadley

    $50

  • Vino

    $50

  • Jeanie Calenoff

    $50

  • Mary Lopez

    $10

  • The Paul Family

    $50

  • Suzanne Berry

    $25

  • The Judge Family

     

  • Gail M. Oakes

    $50

  • Christine Kaiser

    $20

  • Anonymous

    $200

  • Kathy Orr

    $50

  • Liz Robinson

    $20

  • The Silverton Family

    $100

  • Mark & Regina

     

  • the Grayson Family

     

  • Anne Borg

    $500

  • Gina SIerra

    $20

  • Sharon Kidd

    $50

  • Ray & Sandy Brooks

    $50

  • K&E

    $42

  • The Clarke Family

    $25

  • Jean & Bob Nelson

    $100

  • Nicki

    $50

  • Jen Nelson

    $50

  • Garrity Family

    $20

  • Diane

    $50

  • Uncle Bill & Aunt Pam

    $50

  • nemeroff family

     

  • Levy Family

    $50

  • Sarah Butler

    $25

  • Deborah Hall

    $100

  • Julie, Kevin, and Colin Peters

    $50

  • Andy and Carol Korovesis

    $50

  • Rob, Rick and Barb Wrona

    $250

  • Julie R

    $50

  • Dale & Terri Mirow

    $50

  • Mom

    $25

  • Mary Brown

    $50

  • The Grabskes

    $50

  • Jan & Rick Rozenboom

    $50

  • The Butler Family

    $100

  • Martha Fox

    $50

  • The Greenebaum Family

    $250

  • The Rolland Family

    $100

  • Joe Russo

    $50

  • Jeannie Aschkenasy

    $25

  • Jeannie Aschkenasy

    $25

  • Jeannie Aschkenasy

    $25

  • Patricia Kisamore

     

  • dan and sandy vondrasek

    $100

  • Anonymous

    $25

  • The Miller Family

    $50

  • The Withgott Family

    $100

  • Joanne Kalchbrenner

    $50

  • Anonymous

    $50

  • Mark Bear

     

  • Michelle Field

    $100

  • Buehrer Family

    $20

  • John Sweeney

    $50

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91% Raised of $15,000 Goal

Fundraise for this Campaign

The Team: $13,643 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Elizabeth Berry-Kravis

Amount Raised

$6,520

 

65% Raised of $10,000 Goal

Fundraiser Title

Rick Williams

Amount Raised

$1,350

 

135% Raised of $1,000 Goal

Fundraiser Title

Troy & Jackie Tonyan

Amount Raised

$1,175

 

78% Raised of $1,500 Goal

Fundraiser Title

Matt Hoffmann

Amount Raised

$849

Fundraiser Title

Michael Carlson

Amount Raised

$840

Fundraiser Title

Anne Hoffmann

Amount Raised

$761

 

152% Raised of $500 Goal

Fundraiser Title

Crystal Hervey

Amount Raised

$625

 

125% Raised of $500 Goal

Fundraiser Title

Aleece Pollard

Amount Raised

$517

 

103% Raised of $500 Goal

Donor Comments

John Sweeney

John Sweeney

DONATION: $50

4 years ago

Buehrer Family

Buehrer Family

DONATION: $20

4 years ago

Michelle Field

Michelle Field

DONATION: $100

4 years ago

Mark Bear

Mark Bear

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Joanne Kalchbrenner

Joanne Kalchbrenner

DONATION: $50

Great job on the run Mike! 4 years ago

The Withgott Family

The Withgott Family

DONATION: $100

4 years ago

The Miller Family

The Miller Family

DONATION: $50

We love you all! 4 years ago

Anonymous

ANONYMOUS

DONATION: $25

4 years ago

dan and sandy vondrasek

dan and sandy vondrasek

DONATION: $100

4 years ago