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Greater Chicago Fragile X's Fundraiser:

Xtra Miler's Running for Fragile X 2015

Greater Chicago's Photo

BENEFITING: National Fragile X Foundation

EVENT DATE: Nov 08, 2015

Greater Chicago Fragile X

THE STORY:

November 8, 2015 our incredible team will complete the 3rd Naperville Half/Marathon to benefit the Greater Chicago Fragile X Group and the National Fragile X Foundation. Including our very own Fragile X Xpert, Dr. Elizabeth Berry-Kravis!

Fragile X is a family of disorders, including Fragile X Syndrome, FXTAS, and FXPOI.

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Fragile X is the leading cause of inherited mental impairment and the leading known genetic cause of Autism. As many as 1:151 women are carriers of Fragile X. 1:3600-4000 boys /1:4000-6000 girls are born with Fragile X Syndrome.

FXTAS(Fragile X Associated Tremor/Ataxia Syndrome) affects those with the pre-mutation. It is an “adult onset” neurodegenerative disorder, occurring more commonly in males than females. Onset is usually over 50 years of age, and most individuals had no related medical, developmental or neurological problems prior to the appearance of FXTAS symptoms. Females comprise only a small part of the FXTAS population, and their symptoms tend to be less severe.

FXPOI(Fragile X Associate Primary Ovarian Insufficiency)affects pre-mutation females. They may experience infertility and pre-mature menopause.

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality. Your donation will help support local events as well as support the National Fragile X Foundation in support of their mission.

The Mission of the National Fragile X Foundation:

The National Fragile X Foundation unites the Fragile X community to  

◦Enrich lives through educational and emotional support

◦Promote public and professional awareness

◦Advance research toward improved treatments and a cure for Fragile X Thank you for your support!

DONATE

To This Fundraiser

$14,638

MONEY RAISED
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  • Anonymous

    $25

  • The Blackburn Family

    $26.20

  • Therese Finazzo

     

  • Sue and Allen Kravis

    $40

  • David and Diane Archibald

    $20

  • Anonymous

    $250

  • Mark Irvine (Progenity)

    $50

  • Jen Gorman

    $25

  • Caryn & Bill Schuman

    $150

  • Kisha Johnson Isidore

    $50

  • Lambur Girls

    $20

  • Anonymous

    $25

  • Michelle Field

    $100

  • Jean and Nick Matich

    $100

  • Betty & Mike Pierret

    $100

  • the Nemeroff's

    $50

  • Chris Boyer

    $75

  • John D'Emilio

    $75

  • Stotts

    $25

  • Kevin and Terra Schultz

    $50

  • Marina Mogilner

     

  • Jim Sack

    $50

  • Kirk hoppe

    $50

  • Gosia Fidelis

     

  • Maureen & Jack Kelly

    $50

  • Randey & Steven Grossman

     

  • Barb Voris

    $500

  • Suzanne Berry

    $25

  • Anonymous

    $50

  • PCB- Power, Courage, Bravery

    $50

  • Rola Fahs

    $100

  • Brian and Beth Lawinger

     

  • Megan Meyer

    $25

  • Corey Capers & Kristina Del Pino

     

  • $40

    $40

  • Plank Sheffield family

    $20

  • Chris (Maier) Mocarski

    $50

  • Anonymous

    $25

  • Sheryl Ford and family

     

  • Jennifer Brier

     

  • Rappin/Levy

    $50

  • The Schmidts

    $50

  • Mark Liechty & Laura Hostetler

     

  • Pat and Debbie Cassidy

    $50

  • Mary Anderson

    $50

  • Rose and Greg

    $150

  • mooch

    $50

  • Alexander Crawley

     

  • Mike & Jona Crouch

    $110

  • Nicolette D'Amico

    $50

  • Anonymous

    $25

  • Anonymous

     

  • Laura & Adam

    $100

  • Steve Stricker

    $50

  • Uncle Denny and Aunt Sue

    $20

  • Steve Stricker's Mom and Dad

    $50

  • Anthony and Felicia Hill

    $200

  • Francisco Kelly's

    $25

  • Jon & Amy Dudik (friends' of Carla & Bill

    $10

  • the Lambur Family

    $25

  • Tony and Sue Kelly

    $20

  • "Should've been a cowboy"

    $100

  • Janelle

    $20

  • Marsha Mansfield

    $50

  • The VerSchave's

    $100

  • Amy, Jeremy, Salty & Jake

     

  • Kate Halma

     

  • Laureen Majeske

    $25

  • The Graysons

    $50

  • Alex Roumbos

    $20

  • Nancy Landt

    $50

  • McNeela Family

    $50

  • Barb and Dick Butler

    $100

  • Ruth and Jeff Butler

    $250

  • Bill and Mary Pat Griswold

    $20

  • Terry & Linda Williams

    $50

  • Tim and Peggy Cullnan

    $25

  • Mike and Marilyn Morgan

    $25

  • The Pollards

    $25

  • Anonymous

     

  • Lisa Corbin

    $50

  • Anonymous

     

  • Susan Glick

    $25

  • deb doetzer

    $30

  • John and Judie Kunzie

    $100

  • Matt Menke

    $20

  • The Baranoski's

    $20

  • Brad Burke & Scott Shallenbarger

     

  • Claire, Peter and Marguerite

    $20

  • The Lamanna's

    $30

  • Kate, Ben, & Carly Stuckert

    $20

  • Ruth Mandel

     

  • Nancy Jones & Ahmad Abu-Akel

     

  • The Baier Family

     

  • Barb, Rick. and Rob Wrona

    $250

  • Jane KunZie-Brunner

    $500

  • Anonymous

     

  • Stanley Family

    $100

  • Anonymous

    $10

  • Dr. Sue Ellen Krause

    $100

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146% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $14,638 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Elizabeth Berry-Kravis

Amount Raised

$5,760

 

77% Raised of $7,500 Goal

Fundraiser Title

Julie and Kevin Peters

Amount Raised

$4,010

 

201% Raised of $2,000 Goal

Fundraiser Title

Jeffrey Butler

Amount Raised

$1,320

 

88% Raised of $1,500 Goal

Fundraiser Title

mike sawicki

Amount Raised

$1,135

 

114% Raised of $1,000 Goal

Fundraiser Title

Rick Williams

Amount Raised

$830

 

28% Raised of $3,000 Goal

Fundraiser Title

Michael Carlson

Amount Raised

$600

Fundraiser Title

Danielle Buczkowski

Amount Raised

$573

 

115% Raised of $500 Goal

Fundraiser Title

Heather Stallman

Amount Raised

$275

 

55% Raised of $500 Goal

Donor Comments

Dr. Sue Ellen Krause

Dr. Sue Ellen Krause

DONATION: $100

3 years ago

Anonymous

ANONYMOUS

DONATION: $10

3 years ago

Stanley Family

Stanley Family

DONATION: $100

3 years ago

Anonymous

ANONYMOUS

For the amazing Sean Sawicki! 3 years ago

Jane KunZie-Brunner

Jane KunZie-Brunner

DONATION: $500

In honor of Julie and Kevin and John Kunzie who teach us to live faithfully and honorably with Fragile X. 3 years ago

Barb, Rick. and Rob Wrona

Barb, Rick. and Rob Wrona

DONATION: $250

Keep up your good work in helping our kids! 3 years ago

The Baier Family

The Baier Family

3 years ago

Nancy Jones & Ahmad Abu-Akel

Nancy Jones & Ahmad Abu-Akel

3 years ago

Ruth Mandel

Ruth Mandel

In tribute to Rick and Laurie Williams for their indefatigable efforts on behalf of all those suffering from Fragile X. 3 years ago

Kate, Ben, & Carly Stuckert

Kate, Ben, & Carly Stuckert

DONATION: $20

3 years ago