BENEFITING: Cure JM Foundation
EVENT DATE: Jan 16, 2016
Dear Friends and Family,
As you may or may not know, at the age of four my sister, Sophie, was diagnosed with a rare autoimmune disease called Juvenile Dermatomyositis (JDM). In JDM, as with all autoimmune diseases, Sophie’s body started to attack itself. In the case of JDM, it was Sophie’s skin and muscles that were under fire. By the time she was diagnosed, she was in such bad condition that she had difficulty playing with me in the park, dressing herself and was not even able to walk with me across the street to get an ice cream cone.
Sophie was on medicine for over two years and luckily now she is in remission. Sophie had major side effects from the medicine but kept strong throughout her treatment and struggle. Sophie is a real fighter and I am happy she can keep up with me again. Sophie is a JDM warrior and is currently winning her battle. However there is no cure for JDM….yet. This is why I have chosen to focus on JDM as my mitzvah project. I am raising money for Sophie and other kids like her.
This January I will be participating in the 9th annual Cure JM Fundraising run/walk in St. Pete Beach, Florida. I have created a team called Zach’s Warriors. I would like to invite you to join forces with me and my army in support of Sophie and other kids with JDM. Please help us find a cure and win this war.
My goal is to raise over 10,000 dollars for JDM research. Please consider making a donation or, better yet, joining me and my family in St. Pete Beach, Florida on January 16th for the Cure JM National Conference and Fundraising Event. I will be sprinting the whole thing but if you don’t feel like that then just go ahead and walk. Hope to see you at the finish line.
Thank you kindly,
Each year, approximately 2 to 4 children in a million in the United States are diagnosed with Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). JM causes the body’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk and disfigurement. In some severe cases it can even be fatal. And there is no cure…YET.
Learn more about the conference at www.curejm.org or contact us at email@example.com or (760) 487-1079.